ArticlePalliative medicine2022
'It's not just all about the fancy words and the adults': Recommendations for practice from a qualitative interview study with children and young people with a parent with a life-limiting illness.
Article in Palliative medicine, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers, 1 of them a synthesis that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
6 citing papers in PubMed, 1 synthesis or guideline pooled it, 16 citations in OpenAlex.
- Adolescent Loneliness When a Parent Has Cancer: A Qualitative Systematic Review.Psycho-oncology · 2025Pooled it
- Evaluating the quality, reliability and readability of digital and artificial intelligence resources for adults with cancer who have significant caregiving responsibilities for children.PLOS digital health · 2026Article
- 'I'm tired of justifying why my life has stopped': A qualitative analysis of the experiences and support needs of young people caring at the end of life and into bereavement.Palliative care and social practice · 2026Article
- The influence of contextual factors on the sustainability of the family talk intervention after implementation when a parent of children or youths has a life-threatening illness.Palliative & supportive care · 2025Article
- Families' situation of caring for a child with a chronic condition: a mixed methods study.Revista da Escola de Enfermagem da U S P · 2024Article
- Strategies for recruiting the dependent children of patients with a life-limiting illness as research participants.Palliative medicine · 2022Article
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4 authors at 1 institution in 1 country.
Funding
Abstract
backgroundHealthcare professionals report challenges in supporting dying patients who have dependent children. These parents are often uncertain how to meet the needs of their children and require appropriate support from professionals. There is limited evidence based guidance for professionals around this issue, which is informed by the views and experiences of children themselves.
aimTo develop an understanding of the perspective of children on living with parental life-limiting illness and inform recommendations for healthcare professionals.
designQualitative semi-structured interviews were conducted, with thematic analysis of the data. SETTING/
participantsA diverse sample of 32 children aged 6-17, whose parent was living with life-limiting illness, were recruited from across the United Kingdom.
resultsDespite the challenges of living with a parent with a life-limiting illness, the children display agency in their response. The children: feel a responsibility to look after their family; negotiate a relationship with healthcare; employ strategies to maintain some normality; and ensure that the inevitable sadness does not become overwhelming.
conclusionsFive recommendations for healthcare professionals were developed from the findings. Clinicians should encourage dying parents to:
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.