ArticleHealth expectations : an international journal of public participation in health care and health policy2022
Physicians' perceptions of patient participation and the involvement of family caregivers in the palliative care pathway.
Article in Health expectations : an international journal of public participation in health care and health policy, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers, 1 of them a synthesis that pooled it.
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Who cites it
7 citing papers in PubMed, 1 synthesis or guideline pooled it, 16 citations in OpenAlex.
- Shared decision-making in palliative cancer care: A systematic review and metasynthesis.Palliative medicine · 2024Pooled it
- Ensuring a good death: Priorities and concerns of healthcare personnel across healthcare settings.Palliative & supportive care · 2026Article
- Psychometric characteristics of the Chinese version of the patient participation scale.BMC public health · 2025Article
- Health literacy profiles correlate with participation in primary health care among patients with chronic diseases: a latent profile analysis.Frontiers in public health · 2025Article
- Correlation Between Illness Uncertainty in Caregivers of Patients with Liver Cancer, Their Coping Styles, and Quality of Life.Journal of multidisciplinary healthcare · 2024Article
- What makes the palliative care initial encounter meaningful? A descriptive study with patients with cancer, family carers and palliative care professionals.Palliative medicine · 2023Article
- Physicians' perceptions of patient participation and the involvement of family caregivers in the palliative care pathway.Health expectations : an international journal of public participation in health care and health policy · 2022Article
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Authors and funding
5 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionPatient participation is essential for quality palliative care, and physicians play a crucial role in promoting participation. This study explores physicians' perceptions of patients and family caregivers' involvement in the different phases of the palliative pathway and employs a qualitative design with thematic analysis and a hermeneutic approach.
methodsA purposive sampling included physicians who worked in different phases of the palliative pathway. In-depth, semi-structured interviews were conducted with 13 physicians in Norway between May and June 2020.
resultsThree main themes illustrate physicians' perceptions of patients' and family caregivers' involvement: (1) beneficence for the patient and the family caregivers in the early phase, (2) autonomy and shared decision-making in the middle phase, and (3) family involvement in the terminal phase.
conclusionThe physicians perceived bereavement conversations as essential, particularly if the pathway had been challenging. They also perceived patient participation and family caregivers' involvement as contextual. The results reveal that participation differs across the different phases of the palliative pathway. This type of knowledge should be included in the education of health-care professionals. Future research should explore elements vital to successful patient participation and family involvement in the different phases of care. PATIENT OR PUBLIC CONTRIBUTIONS: Family caregivers were involved in a previous study through individual interviews. The same interview guide used for the family caregivers was used when interviewing the physicians. The family caregivers' contribution led to nuanced questions in the interviews with the physicians, questions leaning on their stories told.
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