Evidence map›Paper›PMID 35761786›Full record

ArticleAIDS care2023

"Whenever you need support, you first turn to the group": motivations and functions of WhatsApp groups for youth living with HIV.

Elise Healy, Gabrielle O'Malley, Cyrus Mugo, Anne Kaggiah, David Seeh, Alex Muriithi, Alana R Lopez, Manasi Kumar, Brandon Guthrie, Megan Moreno and 3 more

Abstract read
In one paragraph

Article in AIDS care, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Elise HealyDepartment of Global Health, University of Washington, Seattle, WA, USA.
Gabrielle O'MalleyDepartment of Global Health, University of Washington, Seattle, WA, USA.
Cyrus MugoDepartment of Global Health, University of Washington, Seattle, WA, USA.
Anne KaggiahKenyatta National Hospital, Nairobi, Kenya.
David SeehKenyatta National Hospital, Nairobi, Kenya.
Alex MuriithiKenyatta National Hospital, Nairobi, Kenya.
Alana R LopezDepartment of Global Health, University of Washington, Seattle, WA, USA.
Manasi KumarDepartment of Psychiatry, University of Nairobi, Nairobi, Kenya.
Brandon GuthrieDepartment of Global Health, University of Washington, Seattle, WA, USA.
Megan MorenoDepartment of Pediatrics, University of Wisconsin-Madison, Madison, WI, USA.
Grace John-StewartDepartment of Global Health, University of Washington, Seattle, WA, USA.
Irene InwaniKenyatta National Hospital, Nairobi, Kenya.ORCID 0000-0002-4912-1028
Keshet RonenDepartment of Global Health, University of Washington, Seattle, WA, USA.ORCID 0000-0001-5625-4884

Funding

University of Washington/Fred Hutch Center for AIDS ResearchP30AI027757 · NIAID · UNIVERSITY OF WASHINGTON · PI CONNIE L CELUM · 1988 to 2026
$104.9M
University of Washington Developmental AIDS Research Center for Mental Health (UW ARCH)P30MH123248 · NIMH · UNIVERSITY OF WASHINGTON · PI CHWASTIAK, LYDIA ANN · 2021 to 2024
$5.8M
Pediatric HIV-1 in Africa: Pathogenesis and ManagementK24HD054314 · NICHD · UNIVERSITY OF WASHINGTON · PI JOHN-STEWART, GRACE C. · 2006 to 2016
$1.2M
Leveraging interactive SMS messaging to monitor and support maternal mental health in KenyaK18MH122978 · NIMH · UNIVERSITY OF WASHINGTON · PI RONEN, KESHET · 2020 to 2021
$256k
NIAID NIH HHS P30 AI027757NICHD NIH HHS K24 HD054314NIMH NIH HHS K18 MH122978NIMH NIH HHS P30 MH123248
6 · The paper itself

Abstract

Social support is a critical component of achieving positive health outcomes for youth living with HIV (YLWH). Mobile health (mHealth) has significant potential for providing social support to YLWH. However, little is known about the domains of social support most needed by YLWH which mHealth interventions might address. Drawing on the spontaneous creation of WhatsApp support groups by YLWH in Nairobi, Kenya, we characterized Kenyan YLWH's social support needs and potential roles of social media groups in meeting them. We conducted interviews and focus-groups with 68 YLWH, 24 caregivers and 20 healthcare workers, and observed two YLWH-led WhatsApp groups for 6 weeks. Youth reported that existing support systems, including family and healthcare workers, already provided informational and instrumental support. However, they emphasized unmet companionship and emotional support needs, leading to isolation, hopelessness, and medication adherence challenges. Participants identified connection with other YLWH as a unique source of emotional and companionship support that allowed them to feel more secure and less isolated. Interviews and observed WhatsApp chats demonstrated that WhatsApp groups were a desirable medium for companionship support that overcame barriers to in-person connection.

Indexed as

HIV InfectionsHIV SeropositivityAdolescentHumansKenyaMotivationSelf-Help GroupsSocial SupportmHealthsocial mediasocial supportWhatsAppYouth living with HIV

Identifiers

PMID35761786
PMCPMC9792620

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.