ReviewBMJ global health2022
A call for citizen science in pandemic preparedness and response: beyond data collection.
Review in BMJ global health, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 27 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
27 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Ethical Challenges and Opportunities at the Intersection of One Health and Open Science in India: A Scoping Review.Open research Europe · 2025Pooled it
- Addressing infodemic for pandemic preparedness in the digital age: a focus on Middle Africa.Frontiers in public health · 2024Pooled it
- Mapping risk communication practices in public health emergencies: a scoping review and comparison with Italian regional pandemic plans.BMC public health · 2026Article
- Harnessing Participatory Surveillance Cohorts and Proxy Indicators to Dynamically Track Epidemic Trends and Undiagnosed COVID-19 Infections in Singapore: Longitudinal Observational Study.Journal of medical Internet research · 2026Observational
- Considerations for epidemiological studies investigating emerging post-acute infection syndromes: Long Covid as a case study.EClinicalMedicine · 2026Review
- How can citizen science enhance mental health research quality: theory of change development.BMJ open · 2025Article
- Exploring pandemic preparedness through public perception and its impact on health service quality, attitudes, and healthcare image.Scientific reports · 2025Article
- Proposed approaches for public health surveillance: A literature review for the Canadian National HIV Surveillance Program.Canada communicable disease report = Releve des maladies transmissibles au Canada · 2025Article
- Towards an inclusive Open Science: examining EDI and public participation in policy documents across Europe and the Americas.Royal Society open science · 2025Article
- Epidemiological methods in transition: Minimizing biases in classical and digital approaches.PLOS digital health · 2025Review
- Community perceptions of citizen science approach in pandemic preparedness and response in South and Southeast Asian countries.PLOS global public health · 2025Article
- Gaps and opportunities for data systems and economics to support priority setting for climate-sensitive infectious diseases in sub-Saharan Africa: A rapid scoping review.PLOS global public health · 2025Article
- Unlocking the Potential for Implementation of Equitable, Digitally Enabled Citizen Science: Multidisciplinary Digital Health Perspective.Journal of medical Internet research · 2024Article
- How can digital citizen science approaches improve ethical smartphone use surveillance among youth: Traditional surveys versus ecological momentary assessments.PLOS digital health · 2024Article
- Detection of clade 2.3.4.4b highly pathogenic H5N1 influenza virus in New York City.Journal of virology · 2024Article
- Citizen Science Studies in Nursing: A Systematic Review.Nursing reports (Pavia, Italy) · 2024Review
- Detection of clade 2.3.4.4b highly pathogenic H5N1 influenza virus in New York City.bioRxiv : the preprint server for biology · 2024Article
- Building citizen science intelligence for outbreak preparedness and response: a mixed-method study in nine countries to assess knowledge, readiness and feasibility.BMJ global health · 2024Article
- Hunting emerging viruses through participatory community science.Nature microbiology · 2024Article
- Incorporating citizen science engagement in a vector surveillance undergraduate internship.Discover education · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
28 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The COVID-19 pandemic has underlined the need to partner with the community in pandemic preparedness and response in order to enable trust-building among stakeholders, which is key in pandemic management. Citizen science, defined here as a practice of public participation and collaboration in all aspects of scientific research to increase knowledge and build trust with governments and researchers, is a crucial approach to promoting community engagement. By harnessing the potential of digitally enabled citizen science, one could translate data into accessible, comprehensible and actionable outputs at the population level. The application of citizen science in health has grown over the years, but most of these approaches remain at the level of participatory data collection. This narrative review examines citizen science approaches in participatory data generation, modelling and visualisation, and calls for truly participatory and co-creation approaches across all domains of pandemic preparedness and response. Further research is needed to identify approaches that optimally generate short-term and long-term value for communities participating in population health. Feasible, sustainable and contextualised citizen science approaches that meaningfully engage affected communities for the long-term will need to be inclusive of all populations and their cultures, comprehensive of all domains, digitally enabled and viewed as a key component to allow trust-building among the stakeholders. The impact of COVID-19 on people's lives has created an opportune time to advance people's agency in science, particularly in pandemic preparedness and response.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.