ArticleAutism : the international journal of research and practice2023
The experiences of parents raising children with developmental disabilities in Ethiopia.
Article in Autism : the international journal of research and practice, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers.
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Who cites it
16 citing papers in PubMed.
- Risk and protective factors of depression among caregivers of children with disabilities in rural Rwanda.BMJ global health · 2026Trial
- Feasibility, acceptability, and preliminary impact of the WHO-Caregiver skill training (CST) in a low-income clinical setting: a mixed-methods evaluation.BMC health services research · 2026Article
- Camp-Based Screening as a Pragmatic Approach for Early Detection of Developmental Disorders in Young Children.Indian journal of pediatrics · 2026Article
- Faith, stigma, and resilience: a qualitative study of the experiences of mothers raising children with autism spectrum disorder in West Azerbaijan, Iran.BMC psychology · 2026Article
- Children with intellectual disabilities in a low-resource setting: a qualitative study of parents' perspectives.European journal of pediatrics · 2026Article
- Article
- Sensory and cognitive awareness impairment patterns in children with autism spectrum disorder: a factorial analysis of the underlying constructs.Child and adolescent psychiatry and mental health · 2025Article
- Screening young children for neurodevelopmental differences in sub-Saharan Africa: a scoping review.BMC psychiatry · 2025Article
- Psychosocial impact on parents Raising children with cerebral palsy at Gondar comprehensive specialized hospital, Northwest Ethiopia.BMC neurology · 2025Article
- Parents' Perceptions Regarding Needs and Readiness for Tele-Practice Implementation Within a Public Health System for the Identification and Rehabilitation of Children with Hearing and Speech-Language Disorders in South India.International journal of environmental research and public health · 2025Article
- Collaboration for the inclusion of students with disabilities in education in Gondar, Ethiopia.African journal of disability · 2025Article
- Centering caregiver voices on caregiving needs of children with neurodevelopmental disorders in low-resource settings.PloS one · 2025Article
- Identifying Needs of Ethiopian and Eritrean American Parents of Autistic Children.Journal of autism and developmental disorders · 2024Article
- Challenges and coping mechanisms of parents of children with attention deficit hyperactivity disorder in Addis Ababa, Ethiopia: a qualitative study.BMC psychology · 2024Article
- Article
- Conceptualising the empowerment of caregivers raising children with developmental disabilities in Ethiopia: a qualitative study.BMC health services research · 2023Article
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Authors and funding
5 authors.
Funding
Abstract
lay abstractThe experiences of parents raising children with developmental disabilities have been widely researched, although most of this research comes from Western, high-income countries. In comparison, little is known about the lived experiences of parents of children with developmental disabilities in low- and middle-income countries and in Africa in particular. We interviewed 14 mothers and 4 fathers in Addis Ababa and the rural town of Butajira to explore what life is like for parents caring for children with developmental disabilities in Ethiopia. Cultural and religious beliefs played a role in the types of delays or differences in their child's development that parents noticed early and the kinds of support they sought. Parents experienced stigma and lack of understanding from others. Their experiences regarding some of the challenges they faced such as lack of appropriate services varied based on where they lived (urban or rural). Single mothers especially were faced with multiple struggles including poverty, stigma, and lack of social support. Implications for future research and interventions that aim to increase knowledge about developmental disabilities, tackle stigma and improve the lives of children and their families are discussed.
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