Evidence map›Paper›PMID 35749467›Full record

ArticleThe Australian journal of rural health2022

'It sort of has the feel of being at home': Mixed-methods evaluation of a pilot community-based palliative end-of-life service in a regional setting.

Tonelle Handley, Christine Jorm, Christine Symington, Louis Christie, Erin Forbes, Alice Munro, Richard Cheney

Abstract read
In one paragraph

Article in The Australian journal of rural health, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Tonelle HandleySchool of Medicine and Public Health, University of Newcastle, Callaghan, NSW, Australia.
Christine JormSchool of Medicine and Public Health, University of Newcastle, Callaghan, NSW, Australia.
Christine SymingtonWestern NSW Local Health District, Orange, NSW, Australia.
Louis ChristieWestern NSW Local Health District, Orange, NSW, Australia.
Erin ForbesSchool of Medicine and Public Health, University of Newcastle, Callaghan, NSW, Australia.ORCID https://orcid.org/0000-0003-0073-4621
Alice MunroWestern NSW Local Health District, Orange, NSW, Australia.ORCID https://orcid.org/0000-0002-8914-3504
Richard CheneyWestern NSW Local Health District, Orange, NSW, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveTo evaluate the acceptability and effectiveness of a small community-based hospice on the end-of-life experiences of patients and families.

methodsMixed-methods study.

designPatient admission data were used to assess utilisation of the hospice. Open-ended interviews with hospice patients and their families/carers were used to understand the emotional effects of the service.

settingA small palliative end-of-life hospice in a rural town in NSW, Australia, during a 12-month trial period that began in March 2019. Data were collected in October-November 2019.

participantsPatients, families and carers who used the hospice during the trial period, as well as staff working at the hospice. MAIN OUTCOME MEASURE(S): Quantitative measures included the number of patients admitted to the hospice, the average length of stay and the overall occupancy rate of the hospice. Quantitative interviews were used to explore the experiences of patients and families who used the hospice, and whether the hospice met their end-of-life needs.

resultsDuring the trial, 58 patients were admitted to the hospice. The majority of admissions were less than 7 days. Two patients and nine family members were interviewed about their experiences, and six staff completed interviews. Experiences were consistently positive, with the community setting of the hospice contributing to a peaceful and home-like end-of-life experience. Interviewees described meaningful relationships with staff, a pleasant physical environment and the comprehensive care provided were key elements of this experience.

conclusionThis model, embedding end-of-life care within a residential aged care facility, facilitated a positive end-of-life experience for residents of this regional community. The development of local models to meet local needs is essential to enabling people nearing the end of life to remain in their location of choice, and ensure that their needs are met at this vulnerable time.

Indexed as

Hospice CareTerminal CareAgedCommunity Health ServicesDeathHumansPalliative Carecommunity-basedhospicenurse-ledpalliative carerural

Identifiers

PMID35749467
PMCPMC9796149

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.