ReviewHealth promotion international2022
Participatory research in health promotion: a critical review and illustration of rationales.
Review in Health promotion international, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed, 2 syntheses or guidelines pooled it, 41 citations in OpenAlex.
- Improving student diet and food security in higher education using participatory and co-creation approaches: a systematic review.The international journal of behavioral nutrition and physical activity · 2024Pooled it
- Participatory research with carers: A systematic review and narrative synthesis.Health expectations : an international journal of public participation in health care and health policy · 2024Pooled it
- A participatory research to assess how a student citizens' assembly can facilitate the co-creation of nutrition interventions in higher education settings.BMC public health · 2024Trial
- Questions for more insightful and useful analyses of barriers and facilitators to public involvement and engagement in health research: a critical narrative review.Research involvement and engagement · 2026Review
- The use of deliberative dialogue in health services research: a scoping review.Research involvement and engagement · 2026Review
- Dialogue matters. Exploring Deaf people's research experiences in Poland.Journal of deaf studies and deaf education · 2026Article
- Towards socially robust policy modelling: scoping review of public involvement in computational policy modelling.Health research policy and systems · 2026Article
- A systemic, multistakeholder participatory approach to research, innovation and action agenda setting for more integrated and effective prevention of HIV and other STIs: the case of Catalonia, Spain.Frontiers in public health · 2026Article
- [Working across sectors and with citizens to create a healthy living environment: what works, why, and in what context].TSG : tijdschrift voor gezondheidswetenschappen · 2026Article
- "Scientific or democratic?" Bridging the implementation gap of citizen science through the study of social-symbolic objects.Frontiers in public health · 2026Article
- Emerging practice in mental health patient and public involvement research advisory groups: a narrative review.BMC psychiatry · 2025Review
- Health-Promoting Effects and Everyday Experiences With a Mental Health App Using Ecological Momentary Assessments and AI-Based Ecological Momentary Interventions Among Young People: Qualitative Interview and Focus Group Study.JMIR mHealth and uHealth · 2025Article
- Understanding the experiences of family, friends and carers attending Recovery Colleges: focus group study.BJPsych open · 2025Article
- Participatory health research and promotion with migrant communities in Germany: a scoping review.Frontiers in public health · 2025Article
- Meaningful public involvement: changing research institutions toward epistemic justice.Frontiers in public health · 2025Article
- Participatory research with co-researchers with lived experience of psychosis high risk states.Frontiers in psychiatry · 2025Article
- Designing a Positive Health Dialogue Tool for Adolescents and Young Adults: A Mixed Methods Study.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Article
- Strategies for involving patients and the public in scaling initiatives in health and social services: A scoping review.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Group Health & Wellness Coaching: development and validation of the required competencies.BMC health services research · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
Abstract
In health promotion research, enthusiasm for patient and public involvement (PPI) is growing. However, a lack of conceptual clarity leads to ambiguities in participatory processes and purposes, and hampers efforts to achieve and evaluate PPI in research. This study provides an overview of its underlying reasons-or rationales-so as to better understand, guide and interpret PPI in research practice. We conducted a critical review to identify typologies of rationales for PPI. We re-categorized the different types of rationales from these typologies based on their content. We illustrated the resulting categories of rationales with examples from a case study on PPI in research on Lyme disease. Five categories of rationales for PPI were identified. The democratic rationale reflects the normative right of citizens to have a voice in research. The consumerist rationale refers to the economic right of stakeholders with interests to have a say. Rooted in social justice, the transformative rationale seeks to empower marginalized groups. The substantive rationale starts from epistemic considerations and aims to improve the quality of knowledge that research generates. The instrumental rationale is of pragmatic origin and refers to improved efficiency and effectiveness of the research. Our overview of categories of rationales can be used as a frame of reference for PPI in health promotion research. Exploring, stating explicitly and reflecting on the underlying reasons for PPI may help to define realistic purposes, select matching approaches and design appropriate evaluation studies. This might also contribute to the conceptualization of PPI.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.