ArticleInternational journal of environmental research and public health2022
Development of a Patient Decision Aid to Support Shared Decision Making for Patients with Recurrent High-Grade Glioma.
Article in International journal of environmental research and public health, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
7 citing papers in PubMed, 9 citations in OpenAlex.
- A scoping review: Understanding brain tumor patients' decisional needs and preferences.Neuro-oncology practice · 2025Review
- Shared decision-making in neuro-oncology: Existing practices and future steps.Neuro-oncology practice · 2025Article
- From Paper to Pixels: Digital Transition of a Patient Decision Aid-A Pilot Study.Mayo Clinic proceedings. Digital health · 2025Article
- Have a vital end-user been overlooked? Developing a shared decision intervention for patients with potential pancreatic cancer regarding the choice of surgery.PEC innovation · 2024Article
- Strategies for meaningful patient and public involvement in neuro-oncological research.Neuro-oncology practice · 2024Article
- Large language models as decision aids in neuro-oncology: a review of shared decision-making applications.Journal of cancer research and clinical oncology · 2024Review
- Treatment of Adult Gliomas: A Current Update.Brain & NeuroRehabilitation · 2022Review
Corrections and comments
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Authors and funding
5 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
When high-grade gliomas recur, patients, their families, and clinicians face difficult medical decisions. There is no curable treatment, and the treatment options all come with a risk of complications and adverse effects. The patients are often cognitively affected, and they need tailored decision support. The objective of this study was to develop a patient decision aid (PtDA) targeted at patients with recurrent high-grade gliomas. Based on existing knowledge and the International Patient Decision Aids Standards, the PtDA was developed through an iterative process. The PtDA was alpha-tested by potential users to assess its acceptability and usability. The development team comprised three clinicians, two patients, two family members, and a researcher. The fifth version of the PtDA was submitted to the alpha test. Eleven patients, nine family members, and eleven clinicians assessed the PtDA and found it acceptable. Three changes were made during the alpha test. Most participants perceived the PtDA to prepare patients for decision making and improve consultations. The involvement of potential users was emphasized during the development and alpha test process. The PtDA was assessed as useful and acceptable by patients, family members, and clinicians in the decision-making situation of recurrent high-grade glioma.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.