ArticleInternational journal of environmental research and public health2022
Unmet Information Needs of Patients with Rheumatic Diseases: Results of a Cross-Sectional Online Survey Study in Germany.
Article in International journal of environmental research and public health, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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Who cites it
15 citing papers in PubMed.
- Digitally-supported patient-centered asynchronous outpatient follow-up in rheumatoid arthritis - an explorative qualitative study.BMC health services research · 2022Trial
- Development and Nationwide Multicentre Evaluation of Guideline-Grounded Large Language Model Chatbots to Support Patient Self-Management and Education in Rheumatology.Journal of medical systems · 2026Article
- A patient-derived benchmark for evaluating large language models in connective tissue diseases: blinded multi-stakeholder assessment and guideline comparison.Rheumatology international · 2026Observational
- [Large language models in rheumatology : New ways of knowledge transfer].Zeitschrift fur Rheumatologie · 2026Review
- Patient experiences, attitudes, and profiles regarding artificial intelligence in rheumatology: a German national cross-sectional survey study.Rheumatology international · 2025Article
- Assessment of Health-Related Quality of Life in Patients with Active Versus Inactive Adult-Onset Still's Disease: Data from the PRO-AOSD Survey During the COVID-19 Pandemic.Journal of clinical medicine · 2025Article
- [The potential of medical comics in rheumatology-Results of a standardized survey at the German Rheumatology Congress 2024].Zeitschrift fur Rheumatologie · 2025Article
- Potentials and barriers of digital patient education in rheumatic disease management: an exploratory qualitative interview study.Rheumatology international · 2025Article
- Social media in myositis care - an exploratory mixed-methods study among myositis patients (SociMyo).Rheumatology international · 2025Article
- Factors Influencing the Intentions of Patients With Inflammatory Rheumatic Diseases to Use a Digital Human for Medication Information: Qualitative Study.Journal of medical Internet research · 2025Article
- Digital Transformation of Rheumatology Care in Germany: Cross-Sectional National Survey.Journal of medical Internet research · 2025Article
- Rheumatology in the digital health era: status quo and quo vadis?Nature reviews. Rheumatology · 2024Review
- Efficacy of a cognitive-behavioral digital therapeutic on psychosocial outcomes in rheumatoid arthritis: randomized controlled trial.Npj mental health research · 2024Article
- Healthcare utilization and unmet needs of patients with antisynthetase syndrome: An international patient survey.Rheumatology international · 2023Article
- Analyzing web searches for axial spondyloarthritis in Germany: a novel approach to exploring interests and unmet needs.Rheumatology international · 2023Article
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Authors and funding
11 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
To effectively self-manage a chronic disease, patients require specific education. In clinical routines, rheumatologists and other healthcare professionals often cannot devote the necessary time to adequately educate their patients. Digital technologies such as mobile applications represent promising tools to overcome this problem. This study aims to identify unmet information needs of patients with rheumatic diseases to inform the conception of a mobile education application. An online national survey was developed together with rheumatic patients and rheumatologists and distributed between June and September 2021 via social media (Instagram, Facebook, Twitter), QR code and email. Self-reported rheumatic patients, rheumatologists, specialized rheumatology nurses (SRN) and self-reported relatives of rheumatic patients were eligible to participate in the survey. Three major topics were addressed: (1) How well do patients feel informed about disease-relevant topics; (2) how important do patients rate different disease-relevant topics; and (3) patient willingness to adopt digital education services. Responses of 254 patients and 53 SRN were analyzed. Most patients were female (91%;
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