Evidence map›Paper›PMID 35737554›Full record

ArticleFamilies, systems & health : the journal of collaborative family healthcare2023

Remote and in-person research education for people with Parkinson's disease and their care partners.

Nicole Schindler, Allison A Bay, Molly M Perkins, Jordan Jackson, Liang Ni, Suraj Pothineni, Ron Wincek, Madeleine E Hackney

Open access · greenAbstract read
In one paragraph

Article in Families, systems & health : the journal of collaborative family healthcare, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
1.9field-weighted citation impact, top 14% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 7 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors at 2 institutions in 1 country.

Nicole SchindlerCollege of Arts and Sciences.
Allison A BayDepartment of Medicine.ORCID 0000-0002-7950-8506
Molly M PerkinsDepartment of Medicine.
Jordan JacksonRollins School of Public Health.
Liang NiDepartment of Medicine.
Suraj PothineniDepartment of Medicine.
Ron WincekDepartment of Medicine.ORCID 0000-0002-4331-4005
Madeleine E HackneyDepartment of Medicine.
Rollins College · UST.K.M. College of Arts and Science

Funding

Implementing a Maternal health and PRegnancy Outcomes Vision for Everyone (IMPROVE)UL1TR002378 · NCATS · EMORY UNIVERSITY · PI Andres J Garcia, Elizabeth O. Ofili · 2017 to 2026
$92.1M
Atlanta Clinical and Translational Science Institute (ACTSI) RenewalUL1TR000454 · NCATS · EMORY UNIVERSITY · PI STEPHENS, DAVID S · 2012 to 2016
$25.8M
Partnered Dance Aerobic Exercise as a neuroprotective, motor and cognitive intervention in Parkinson's diseaseI01RX002967 · VA · VETERANS HEALTH ADMINISTRATION · PI HACKNEY, MADELEINE EVE · 2020 to 2024
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Optimizing motor training in Parkinson disease through neural mechanismsIK2RX000870 · VA · VETERANS HEALTH ADMINISTRATION · PI HACKNEY, MADELEINE EVE · 2015 to 2018
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Emory Center for Health in AgingNCATS NIH HHS UL1 TR000454NCATS NIH HHS UL1 TR002378Parkinson FoundationPatient Centered Outcomes Research InstituteRRD VA I01 RX002967RRD VA IK2 RX000870
6 · The paper itself

Abstract

objectiveTeleDREAMS, a distance learning version of the Developing a Research Participation Enhancement and Advocacy Training Program for Diverse Seniors (DREAMS) program, provides remote clinical research process and advocacy education to older adults with Parkinson's disease (PD) and their care partners.

methodParticipants engaged in remote learning, reading eight weekly clinical research process and advocacy education modules. They also had weekly half hour phone discussions with staff about each module. Participants (PD:

resultsPeople with PD improved on health literacy postintervention. PD participants who participated with care partners improved more on health literacy than those without care partners. PD participants' attrition rates were lower for PD participants in TeleDREAMS than those of the similar, in-person program DREAMS program studied before TeleDREAMS. Most participants reported research involvement and patient advocacy for older adults with PD 6 to 9 months postprogram.

conclusionsTeleDREAMS may improve health literacy in participants with Parkinson's and their care partners. If increased advocacy and health and research literacy translates to increased research involvement, then TeleDREAMS could be an important strategy for researchers interested in increasing participation. (PsycInfo Database Record (c) 2023 APA, all rights reserved).

Indexed as

Health LiteracyParkinson DiseaseAgedCaregiversHumansQuality of Life

Identifiers

PMID35737554
PMCPMC9826735
OpenAlexW4283371741

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.