ArticleBMC medical ethics2022
Patient participation in Dutch ethics support: practice, ideals, challenges and recommendations-a national survey.
Article in BMC medical ethics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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Who cites it
7 citing papers in PubMed.
- The Concept of Harm in Medical Ethics.Bioethics · 2026Article
- Case-Based Clinical Ethics Support - A Description and Normative Discussion of Methodological Issues from the Swedish Perspective.HEC forum : an interdisciplinary journal on hospitals' ethical and legal issues · 2026Article
- Experiences with remote ethics consultation: a qualitative study with ethics consultants in Germany.BMC medical ethics · 2026Article
- Patient Participation in Clinical Ethics Interventions: A Requirement of Procedural and Epistemic Justice.Bioethics · 2026Article
- Hospital ethics committees: responsibilities, competencies and challenges.BMC medical ethics · 2026Article
- Ethics support personnel's perceptions of patient and parent participation in clinical ethics support services in pediatric oncology.BMC medical ethics · 2025Article
- Instruments for Value Elucidation in Older Adults in Clinical Practice-A Scoping Review.Journal of the American Geriatrics Society · 2025Article
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Authors and funding
4 authors.
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Abstract
backgroundPatient participation in clinical ethics support services (CESS) has been marked as an important issue. There seems to be a wide variety of practices globally, but extensive theoretical or empirical studies on the matter are missing. Scarce publications indicate that, in Europe, patient participation in CESS (fused and abbreviated hereafter as: PP) varies from region to region, and per type of support. Practices vary from being non-existent, to patients being a full conversation partner. This contrasts with North America, where PP seems more or less standard. While PP seems to be on the rise in Europe, there is no data to confirm this. This study sought a deep understanding of both habits and the attitudes towards PP in the Netherlands, including respondents' practical and normative perspectives on the matter. METHODS AND
resultsWe developed a national survey on PP for Dutch CESS staff. Our survey comprised a total of 25 open and close-ended questions, focused on four topics related to PP (1) goals of CESS, (2) status quo of PP, (3) ideas and ideals concerning PP, and (4) obstacles for PP. DISCUSSION: The four most important findings were that: (1) Patient participation in Dutch CESS is far from standard. (2) Views on patient participation are very much intertwined with the goals of ethics support. (3) Hesitations, fears and perceived obstacles for PP were not on principle and (4) Most respondents see PP as a positive opportunity, yet requiring additional training, practical guidance and experience.
conclusionsVarious normative reasons require PP. However, PP seems far from standard and somewhat rare in Dutch CESS settings. Our respondents did not raise many principled objections to PP. Instead, reasons for the lack of PP are intertwined with viewpoints on the goals of CESS, which seemingly focus on supporting health care professionals (HCPs). Training and practical guidance was thought to be helpful for gaining experience for both CESS staff and HCPs.
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