ArticleEuropean journal of cancer care2022
Challenges in self-management of persons living with advanced cancer: An exploratory, in-depth interview study.
Article in European journal of cancer care, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
8 citing papers in PubMed, 1 synthesis or guideline pooled it, 12 citations in OpenAlex.
- Self-care towards the end of life: A systematic review and narrative synthesis on access, quality and cost.Palliative medicine · 2025Pooled it
- Factors influencing patient activation among patients with cancer: A scoping review.Asia-Pacific journal of oncology nursing · 2026Review
- Observational
- Barriers and facilitators to self-management in people living with a lower-grade glioma.Journal of cancer survivorship : research and practice · 2025Article
- Patterns of symptom deterioration can support multimorbidity management in COPD: Perspectives of patients and healthcare professionals.PloS one · 2025Article
- A qualitative study on redefining normality in relatives of patients with advanced cancer.Cancer medicine · 2024Article
- Challenges in self-management of persons living with advanced cancer: An exploratory, in-depth interview study.European journal of cancer care · 2022Article
- Effectiveness of the "Living with Cancer" peer self-management support program for persons with advanced cancer and their relatives: study protocol of a non-randomized stepped wedge study.BMC palliative care · 2022Article
Corrections and comments
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Authors and funding
11 authors at 2 institutions in 2 countries.
Funding
Abstract
objectiveTo obtain insight in self-management challenges of persons with advanced cancer and factors that influence their self-management.
methodsExploratory study among persons with advanced cancer. We conducted in-depth interviews and performed an inductive thematic analysis, using open, axial and selective coding.
resultsWe interviewed 33 persons with advanced cancer. Four self-management challenges were identified: (1) Dealing with physical and psychological symptoms and problems. (2) Navigating the illness trajectory, including management of clinical appointments and treatment regimens, end-of-life planning life and 'maintaining normality'. (3) Managing relations with healthcare professionals, including contributing experiential knowledge to medical decision-making. (4) Navigating changes in the social environment. Some participants responded proactively to these challenges, for example, by actively searching for information to obtain an extensive understanding of their illness and (re)scheduling medical appointments for a better fit in their agenda. Self-management strategies seemed to be influenced by patients' personality, life history, moment in the illness trajectory and the social environment.
conclusionSelf-management challenges of persons with advanced cancer are based largely outside the professional care setting. Self-management strategies in response to these challenges are typically aimed at maintaining a normal life. Self-management support should be tailored to patients' needs and part of trustful partnerships with patients and relatives.
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Registered trials
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