ArticleDevelopmental medicine and child neurology2023
Transition to adult services experienced by young people with cerebral palsy: A cross-sectional study.
Article in Developmental medicine and child neurology, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed.
- "We Don't Know What to Do With an Adult" A Qualitative Study of Cerebral Palsy Transition Gaps.Archives of physical medicine and rehabilitation · 2026Article
- Social support as leverage? A quantitative study of social support as a mediator of the relationship between disability/activity limitations and psychological distress among young adults in Ghana.BMC public health · 2026Article
- Exploring integrated care for children with cerebral palsy: a stakeholder analysis.BMC health services research · 2025Article
- A Cross-Sectional Study of Disparities in Healthcare Transition in Cerebral Palsy.Journal of clinical medicine · 2024Article
- Child-to-adult transition: a survey of current practices within the European Reference Network for Rare Neurological Diseases (ERN-RND).Neurological sciences : official journal of the Italian Neurological Society and of the Italian Society of Clinical Neurophysiology · 2024Article
- Transition from child to adult health services for young people with cerebral palsy in Ireland; implications from a mixed-methods study.HRB open research · 2024Article
- Health care transition experiences of young adults with medical complexity.Health care transitions · 2024Article
- Transfer of musculoskeletal care from paediatric to adult services for patients with cerebral palsy and chronic neuromuscular conditions: Identifying the unmet need.Health care transitions · 2024Article
- Managing Pulmonary Complications in Adults With Cerebral Palsy: A Vulnerable Transition.CHEST pulmonary · 2023Article
- Transition to adult services experienced by young people with cerebral palsy: A cross-sectional study.Developmental medicine and child neurology · 2023Article
- Social Support Initiatives That Facilitate Exercise Participation in Community Gyms for People with Disability: A Scoping Review.International journal of environmental research and public health · 2022Article
- Co-designing resources to support the transition from child to adult health services for young people with cerebral palsy: A design thinking approach.Frontiers in rehabilitation sciences · 2022Article
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Authors and funding
11 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
aimTo assess if young people with cerebral palsy experience and health professionals provide practices that may improve transition from child to adult health services.
methodSeventy-five young people (31 females, 44 males; mean age 18 years 5 months [standard deviation 2 years 2 months]) and/or parents and 108 health professionals completed a questionnaire describing their experience or the provision of nine transition practices.
resultsThe percentage of young people reporting each practice was: appropriate parent involvement (90%); promotion of health self-efficacy (37%); named worker who supports the transition process (36%); self-management support for physical health (36%); self-management support for mental health (17%); information about the transition process (24%); meeting the adult team (16%); and life skills training (16%). Post-discharge, 10% of young people reported that their general practitioner (GP) received a discharge letter. The percentage of health professionals reporting each practice was: promotion of health self-efficacy (73.2%); self-management support (73.2%); information (69%); consulting the parent and young person about parent involvement (63% and 66%); discharge letter to a GP (55%); life skills training (36%); named worker (35%); meeting the adult team (30%); and senior manager (20%).
interpretationMany young people did not experience practices that may improve the experience and outcomes of transition. Young people should be involved in the development and delivery of transition to ensure it meets their needs. WHAT THIS PAPER ADDS: Many young people with cerebral palsy (CP) do not receive support that may improve the experience of transition. Appropriate protocols and training for health professionals may improve the provision of transition and reduce inconsistency in care between and within organizations. Young people and their families should be involved in service design, delivery, and evaluation related to the transition to ensure it meets their needs.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.