ArticlePloS one2022
Awareness of and attitudes towards public involvement in research on ageing and health among older people in Sweden.
Article in PloS one, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
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Who cites it
10 citing papers in PubMed.
- Multicomponent Online Intervention Improves Sarcopenia-Related Traits Following Long-Term Metabolic Bariatric Surgery: A Randomized Clinical Trial.Obesity surgery · 2026Trial
- Older patients' experiences of two exercise programmes in a geriatric ward: a qualitative study.European geriatric medicine · 2026Article
- Perceptions on healthy aging: insights from focus group interviews of older adults in Sweden.Archives of public health = Archives belges de sante publique · 2026Article
- Article
- Citizen science in osteoarthritis research: a scoping review.Journal of orthopaedic surgery and research · 2025Article
- Art and design workshops at a residential care facility - social care professionals' experiences of co-creation and participation in designing the physical environment.BMC health services research · 2024Article
- Development and evaluation of an anti-ageism advisory group with older adults and gerontological experts: a qualitative descriptive study.Research involvement and engagement · 2024Article
- "Why involve older people in research?" Revisiting Alan Walker's earlier editorial based on recent experiences from the UserAge research programme.Research involvement and engagement · 2023Article
- Patient and public involvement in Nordic healthcare research: a scoping review of contemporary practice.Research involvement and engagement · 2023Article
- User involvement in ageing and health research: a survey of researchers' and older adults' perspectives.Health research policy and systems · 2022Article
Corrections and comments
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundWhile the importance of involving older people in research is increasingly acknowledged, quantitative studies exploring the perspectives of larger samples of older people who take an active role in research on ageing and health are scarce. The aim of this study was to investigate the awareness of and attitudes towards public involvement in research on ageing and health among older people in Sweden. MATERIALS AND
methodsData derived from a survey (N = 881) of people aged 60 years or older in Sweden. Demographics, self-rated health, and attitudes were analysed using descriptive statistics. Awareness of and previous active involvement in research were analysed using chi-square tests and Mann Whitney tests. Factors associated with willingness to be actively involved in research were determined by logistic regressions.
resultsOf the 26% who responded (N = 881), 39% (n = 343) were aware that they could be actively involved in research. Awareness and previous active involvement in research were significantly associated with a higher level of education. Public involvement was believed to enhance research communication and enable valuable contributions related to ageing. The proportion of respondents who were willing to be actively involved in research was significantly higher for respondents with previous experience and a higher level of education.
conclusionsEngaging older people in Sweden in research targeting active involvement in research presents a challenge. The study shows an over-representation of people with higher education, who tend to be more aware, have previous experience, and are more willing to be involved in research with public involvement. This implies a risk that groups with lower education are not represented, and that knowledge co-produced with mostly highly educated groups will lead to a biased picture. Further studies are needed to understand how an increased awareness of research and willingness to participate can be achieved. IRRID: RR2-10.2196/17759.
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