Evidence map›Paper›PMID 35723621›Full record

ArticleDevelopmental medicine and child neurology2023

Parenting roles for young people with attention-deficit/hyperactivity disorder transitioning to adult services.

Astrid Janssens, Sharon Blake, Helen Eke, Anna Price, Tamsin Ford

Abstract read
In one paragraph

Article in Developmental medicine and child neurology, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Astrid JanssensUser Perspectives and Community-based Interventions, Department of Public Health, University of Southern Denmark, Odense C, Denmark.ORCID 0000-0001-8419-0937
Sharon BlakeUniversity of Exeter Medical School, Exeter.ORCID 0000-0003-0683-9424
Helen EkeUniversity of Exeter Medical School, Exeter.ORCID 0000-0003-4781-6683
Anna PriceUniversity of Exeter Medical School, Exeter.ORCID 0000-0001-9147-1876
Tamsin FordDepartment of Psychiatry, University of Cambridge, Cambridge, UK.ORCID 0000-0001-5295-4904

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

aimTo inform transitions from child to adult health services, we explored the work and roles parents take in the care of young people with attention-deficit/hyperactivity disorder (ADHD) aged 14 to 25 years old.

methodUsing framework thematic analysis, we analysed data collected from 28 semi-structured interviews with parents of young people with ADHD to generate a typology and triangulated it against findings from 64 interviews with young people with ADHD. The interviews were carried out as part of a three-strand, interactive mixed-method study.

resultsAn entourage typology of three parent roles was identified. Parents moved between 'manager' and 'roadie' roles as their child gradually matured. A 'superfan' role was identified which supported young people's positive self-image but may impede withdrawal from the 'manager' role. Continued parental involvement into adulthood reflected a need to maintain the balance of resources required to maintain quality of life for the whole family.

interpretationThis is the first study to explore parental roles in the health care of young people with ADHD. Parents will vary in their capacity to fulfil the identified roles and step back their care as their children reach adulthood. The findings can inform intervention development to support families and transition between services. WHAT THIS PAPER ADDS: Parents move from a 'manager' to 'roadie' role as young people mature. A 'superfan' role supports positive self-image and directed health care work. Continued involvement reflects parental responsibility to juggle wider family needs and resources. Parents differ in capacity to fulfil and move between these roles.

Indexed as

Attention Deficit Disorder with HyperactivityAdolescentAdultChildHealth ServicesHumansParentingParentsQuality of LifeYoung Adult

Identifiers

PMID35723621
PMCPMC10083944

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.