Evidence map›Paper›PMID 35723508›Full record

ArticleEuropean journal of cancer care2022

Dying of mesothelioma: A qualitative exploration of caregiver experiences.

Jessica T Lee, Dipti L Mittal, Anne Warby, Steven Kao, Haryana M Dhillon, Janette L Vardy

Open access · greenAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in European journal of cancer care, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed, 1 pooled it
0.8field-weighted citation impact, top 28% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 1 synthesis or guideline pooled it, 5 citations in OpenAlex.

  1. Pooled it
  2. Article
  3. Review
  4. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 2 institutions in 1 country.

Jessica T LeeConcord Cancer Centre, Concord Repatriation General Hospital, Concord, New South Wales, Australia.ORCID https://orcid.org/0000-0003-1570-066X
Dipti L MittalConcord Cancer Centre, Concord Repatriation General Hospital, Concord, New South Wales, Australia.
Anne WarbyFaculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.
Steven KaoFaculty of Medicine and Health, The University of Sydney, Sydney, New South Wales, Australia.
Haryana M DhillonCentre for Medical Psychology and Evidence-Based Decision-Making, The University of Sydney, Sydney, New South Wales, Australia.ORCID https://orcid.org/0000-0003-4039-5169
Janette L VardyConcord Cancer Centre, Concord Repatriation General Hospital, Concord, New South Wales, Australia.ORCID https://orcid.org/0000-0002-5739-5790
The University of Sydney · AUUniversity of Technology Sydney · AU

Funding

Dust Diseases Board NSW
6 · The paper itself

Abstract

objectiveTo explore the experience of family caregivers of people with mesothelioma with focus on end-of-life issues.

methodsA qualitative sub-study using semi-structured interviews and thematic analysis.

resultsFourteen caregivers were interviewed; 11 were bereaved. The overarching theme was the impact of patients' diagnosis, treatment and death on caregivers and families. Three main themes were identified: (i) information provision and decision-making; (ii) grief and bereavement; and (iii) involvement and timing of palliative care. Caregivers initially had minimal knowledge of mesothelioma and wanted more information. Prognostic uncertainty caused distress. Grief and bereavement sub-themes were (i) coping and personal priorities; (ii) reflections on dying; and (iii) reflections on care. Caregivers highlighted the importance of creating meaningful events, having hope, 'doing something' and support from family and external sources. Reflections on dying contrasted regret after a 'bad', often unexpected death, with 'good' deaths. Care was made difficult by challenges navigating the health system and perceived gaps. Caregivers reported late referral to palliative care.

conclusionLack of information caused challenges for caregivers. Grief and bereavement outcomes varied and may have been adversely impacted by lack of engagement with palliative care. Integrated care with lung cancer coordinators and improved palliative care access may reduce caregiver burden.

Indexed as

BereavementMesotheliomaAdaptation, PsychologicalCaregiversHumansPalliative CareQualitative Researchbereavementcarerscommunicationdyinglung cancerpalliative care

Identifiers

PMID35723508
PMCPMC9539703
OpenAlexW4283170230

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.