SynthesisFrontiers in oncology2022
Social Media Listening to Understand the Lived Experience of Individuals in Europe With Metastatic Breast Cancer: A Systematic Search and Content Analysis Study.
Synthesis in Frontiers in oncology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
23 citing papers in PubMed.
- Informational needs in vulvar cancer and precursor conditions: a social listening study.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Interpretations of Menstrual Blood Appearance and Diagnostic Potential Among Social Media Users: Cross-Sectional Mixed Methods Social Media Listening Study.Journal of medical Internet research · 2026Article
- Exploring the Experiences and Perspectives of Patients With Early Breast Cancer, Caregivers, and Health Care Professionals: Italian Social Media Listening Study.JMIR cancer · 2026Article
- Patient Voice and Treatment Nonadherence in Cancer Care: A Scoping Review of Sentiment Analysis.Nursing reports (Pavia, Italy) · 2026Review
- The relationship between alexithymia, meaning in life, and quality of life in older breast cancer patients: a cross-sectional study based on variable-centered and person-centered perspectives.Frontiers in medicine · 2026Article
- Bridging evidence worlds: policy and practice pathways for integrating clinical trials and real-world data in drug development and HTA.Frontiers in pharmacology · 2026Article
- Reducing stigma, isolation, and misconceptions in advanced breast cancer: a global expert review and call-to-action for 2025-2035 (Goal 8).Breast (Edinburgh, Scotland) · 2025Review
- Quality of life and psychosocial challenges in metastatic breast cancer: the need for tailored interventions in Turkiye.Future science OA · 2025Article
- Application of patient journey mapping in patients with breast cancer: a scoping review.BMJ open · 2025Article
- Detection of differences in physical symptoms between depressed and undepressed patients with breast cancer: a study using K-medoids clustering.BMC cancer · 2025Article
- Best practices for the collection and analysis of patient experience data from social media for patient-focused drug development.Frontiers in medicine · 2025Review
- Democratizing social media for health research: LLM-powered data analytics platform for NCDs.PloS one · 2025Article
- Quality, reliability, and dissemination of lung cancer information on short-video platforms in China: a cross-platform content analysis of TikTok, Kwai, and Rednote.Frontiers in public health · 2025Article
- Using Natural Language Processing and Social Media Data to Understand the Lived Experience of People with Fibromyalgia.Healthcare (Basel, Switzerland) · 2024Article
- Artificial intelligence-enabled social media listening to inform early patient-focused drug development: perspectives on approaches and strategies.Frontiers in digital health · 2024Article
- Results of the Italian cross-sectional web-based survey "Nutrition and breast cancer, what would you like to know?" An attempt to collect and respond to patients' information needs, through social media.Frontiers in oncology · 2024Article
- Patient listening on social media for patient-focused drug development: a synthesis of considerations from patients, industry and regulators.Frontiers in medicine · 2024Article
- Use of sentiment analysis for capturing hospitalized cancer patients' experience from free-text comments in the Persian language.BMC medical informatics and decision making · 2023Article
- Understanding the Needs and Lived Experiences of Patients With Graft-Versus-Host Disease: Real-World European Public Social Media Listening Study.JMIR cancer · 2023Article
- Perspectives and Experiences of Patients With Thyroid Cancer at a Global Level: Retrospective Descriptive Study of Twitter Data.JMIR cancer · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: Despite a wealth of real-world data on metastatic breast cancer (mBC), insights into the lived experience are lacking. This study aimed to explore how the lived experience of mBC is described on social media. Methods: A predefined search string identified posts relevant to the lived experience of mBC from Twitter, patient forums, and blogs across 14 European countries. The final data set was analyzed using content analysis. Results: A total of 76,456 conversations were identified between November 1, 2018, and November 30, 2020. Twitter was the most commonly used social media platform across all 76,456 conversations from the raw data set ( Conclusions: The findings from this study provided an insight into the lived experience of mBC. While retrospective data collection inherently limits the amount of demographic or clinical information that can be obtained from the population sample, social media listening studies offer training to healthcare professionals in communication, the importance of quality of life, organization of healthcare, and even the design of clinical trials. As new targeted therapies are gradually incorporated into clinical practice, innovative technologies, such as social media listening, have the potential to support regulatory procedures and drug toxicity monitoring, as well as provide the patient voice in the regulation of new and existing medicines.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.