Evidence map›Paper›PMID 35717349›Full record

ArticlePatient education and counseling2022

Older adults with advanced cancer are selective in sharing and seeking information with social networks.

Lee Kehoe, Chandrika Sanapala, Grace DiGiovanni, Reza Yousefi-Nooraie, Sule Yilmaz, Jessica Bauer, Kah Poh Loh, Sally Norton, Paul Duberstein, Charles Kamen and 5 more

Registry-linked trialAbstract read
In one paragraph

Article in Patient education and counseling, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT07393529 (A Pilot Randomized Controlled Trial of a Social Network Intervention for Older Patients With Cancer), which is not on this map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT07393529 narecruitingnot on this mapstarted 2026, after this paper: background citation

A Pilot Randomized Controlled Trial of a Social Network Intervention for Older Patients With Cancer

TypeinterventionalSponsorUniversity of RochesterRan2026 to 2029Enrolled70ConditionsAdvanced Cancer, Older Adults (65 Years and Older), Social NetworksArmsSONATA
3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Lee KehoeJames P. Wilmot Cancer Institute, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA; Division of Supportive Care in Cancer, Department of Surgery, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA. Electronic address: lee_kehoe@urmc.rochester.edu.
Chandrika SanapalaJames P. Wilmot Cancer Institute, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA. Electronic address: Chandrika_sanapala@urmc.rochester.edu.
Grace DiGiovanniJames P. Wilmot Cancer Institute, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA. Electronic address: grace_digiovanni@urmc.rochester.edu.
Reza Yousefi-NooraieDepartment of Public Health Sciences, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA. Electronic address: reza_yousefi-nooraie@urmc.rochester.edu.
Sule YilmazJames P. Wilmot Cancer Institute, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA. Electronic address: Sule_Yilmaz@urmc.rochester.edu.
Jessica BauerJames P. Wilmot Cancer Institute, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA. Electronic address: Jessica_bauer@urmc.rochester.edu.
Kah Poh LohJames P. Wilmot Cancer Institute, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA. Electronic address: kahpoh_loh@urmc.rochester.edu.
Sally NortonDepartment of Medicine, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA; School of Nursing, University of Rochester, Rochester, NY, USA. Electronic address: sally_norton@urmc.rochester.edu.
Paul DubersteinDepartment of Health Behavior, Society and Policy, Rutgers University School of Public Health, Piscataway, NJ, USA. Electronic address: paul.duberstein@rutgers.edu.
Charles KamenJames P. Wilmot Cancer Institute, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA; Division of Supportive Care in Cancer, Department of Surgery, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA. Electronic address: charles_kamen@urmc.rochester.edu.
Nikesha GilmoreJames P. Wilmot Cancer Institute, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA; Division of Supportive Care in Cancer, Department of Surgery, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA. Electronic address: nikeshea_gilmore@urmc.rochester.edu.
Abdi GudinaJames P. Wilmot Cancer Institute, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA. Electronic address: abdi_gudina@urmc.rochester.edu.
Amber KlecknerSchool of Nursing, University of Maryland, Baltimore, MD, USA. Electronic address: amber_kleckner@urmc.rochester.edu.
Supriya MohileJames P. Wilmot Cancer Institute, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA. Electronic address: supriya_mohile@urmc.rochester.edu.
Ronald M EpsteinJames P. Wilmot Cancer Institute, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA; Department of Medicine, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA; Department of Family Medicine, University of Rochester School of Medicine and Dentistry, Rochester, NY, USA. Electronic address: Ronald_epstein@urmc.rochester.edu.

Funding

URCC NCORP Research BaseUG1CA189961 · NCI · UNIVERSITY OF ROCHESTER · PI Michelle C Janelsins, KAREN M. MUSTIAN · 2014 to 2026
$67.7M
Clinical and Translational Cancer Control Research Training ProgramT32CA102618 · NCI · UNIVERSITY OF ROCHESTER · PI Michelle C Janelsins, Gary R Morrow · 2019 to 2026
$2.7M
A Patient-Oriented Research Program in Geriatric OncologyK24AG056589 · NIA · UNIVERSITY OF ROCHESTER · PI Supriya G. Mohile · 2018 to 2026
$1.5M
A Novel Mobile Health Exercise Intervention for Older Patients with Myeloid NeoplasmsK99CA237744 · NCI · UNIVERSITY OF ROCHESTER · PI LOH, KAH POH · 2019 to 2020
$385k
NCI NIH HHS K99 CA237744NCI NIH HHS T32 CA102618NCI NIH HHS UG1 CA189961NIA NIH HHS K24 AG056589
6 · The paper itself

Abstract

backgroundLittle is known about how older adults (OA) with advanced cancer interact with social network members (NM), and the nature of communication. This qualitative study aimed to characterize the processes by which OAs with cancer engage with NMs regarding their illness.

methodsOAs 65 + with advanced cancer and considering treatment (n = 29) and NMs (n = 18) underwent semi-structured interviews asking 1) about their illness understanding; 2) to identify NMs with whom OAs discuss health-related matters; and 3) to describe the content, process, and impact of those illness-related conversations. Three coders analyzed transcribed interviews. Codes were categorized and emergent themes were identified to generate hypotheses.

resultsOAs seek NMs with medical backgrounds for cancer-related information and NMs with personal experience of a serious illness for emotional support. Patients characterize geographical location, frequency of communication, and length of NM relationship as factors that influence the nature of support the NM provides. Additionally, differences emerged between OA and NM perspectives on the depth of conversations and decision-making.

conclusionsA better characterization of how OAs' seek and share information and support may improve medical communication, disease understanding, and support goals-concordant care.

Indexed as

Information Seeking BehaviorNeoplasmsAgedCommunicationHumansQualitative ResearchSocial NetworkingCancerMedical communicationOlder adultsSocial networks

Identifiers

PMID35717349
PMCPMC9724683

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.