ArticleZeitschrift fur Evidenz, Fortbildung und Qualitat im Gesundheitswesen2022
[Long COVID: Care and support needs from the perspective of "long-haul" patients and primary care practitioners - a mixed-methods study from Baden-Wuerttemberg].
Article in Zeitschrift fur Evidenz, Fortbildung und Qualitat im Gesundheitswesen, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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Who cites it
15 citing papers in PubMed.
- [An insight into the long/post COVID care situation in Germany-a rapid scoping review].Bundesgesundheitsblatt, Gesundheitsforschung, Gesundheitsschutz · 2026Review
- Medical invalidation is associated with structural barriers in postacute immune mediated syndromes based on patient perspectives in Germany.Scientific reports · 2026Article
- [Healthcare Situation of 3,345 Long COVID Patients in Germany: Results of a Nationwide Survey].Pneumologie (Stuttgart, Germany) · 2026Article
- How do people with post-COVID syndrome in Germany experience healthcare and information provision? A qualitative interview study.BMJ open · 2026Article
- Patient Experience from a Pilot Study Implementing Software-Based Post-COVID Case Management in GP Practices-A Qualitative Process Evaluation.Healthcare (Basel, Switzerland) · 2025Article
- Patient Perspectives on the Care in a Long COVID Outpatient Clinic-A Regional Qualitative Analysis from Germany.Healthcare (Basel, Switzerland) · 2025Article
- German general practitioners' experiences of managing post-COVID-19 syndrome: A qualitative interview study.The European journal of general practice · 2024Article
- [Follow-up outpatient clinics for patients with post COVID: a survey to assess and characterize aspects of care].Deutsche medizinische Wochenschrift (1946) · 2024Article
- Article
- [Outpatient Long/Post-COVID Care: Barriers and Desires of Affected Persons to Medical Care].Gesundheitswesen (Bundesverband der Arzte des Offentlichen Gesundheitsdienstes (Germany)) · 2023Article
- "There is no one who helps you with it": experiences of people with long COVID regarding medical care, therapeutic measures, and barriers in the German healthcare system: results of a qualitative study with four focus groups.BMC health services research · 2023Article
- Post-COVID-19 Syndrome in Non-Hospitalized Individuals: Healthcare Situation 2 Years after SARS-CoV-2 Infection.Viruses · 2023Article
- COVID-19 Continues to Burden General Practitioners: Impact on Workload, Provision of Care, and Intention to Leave.Healthcare (Basel, Switzerland) · 2023Article
- First insights into multidisciplinary and multispecialty long COVID networks-a SWOT analysis from the perspective of ambulatory health care professionals.Frontiers in medicine · 2023Article
- Treated post-acute sequelae after COVID-19 in a German matched cohort study using routine data from 230,256 adults.Frontiers in epidemiology · 2022Article
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Authors and funding
7 authors.
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No grant is acknowledged in the PubMed record.
Abstract
introductionThe approaches to cope with the challenges of providing medical care to patients with symptoms of long COVID are multidisciplinary and involve primary care worldwide. The aim of this study was to explore the experiences and ideas for continued development of medical care of long COVID from the patients' (PAT) and primary care practitioners' (PCP) perspective.
methodsBetween the third and fourth COVID-19 wave in Germany (July to September 2021), a mixed methods study was conducted by inviting patients and PCPs in two neighboring districts (urban and rural) in Baden-Wuerttemberg to a paper-based questionnaire with both closed and open questions. On the part of the PCPs a written, anonymized, complete survey was conducted, on the part of symptomatic COVID long-haulers an anonymized online survey with announcement of the study by multiple recruiting processes. Qualitative content analysis was applied to free text entries. The quantitative results were analyzed mainly descriptively.
resultsThe responses of n = 72 PCPs (response rate 12%) and n = 126 PAT showed a heterogeneous assessment regarding the satisfaction with medical care for long COVID as well as the perception of the attitude towards patients and their disease in both groups. Uncertainty and dealing with it played a relevant role in both groups as well. The professional medical knowledge was assessed by 3,1 (self-assessment PCPs) and 3,2 (PAT) on average using a five-point Likert scale (1 = not applicable; 5 = applicable). The request for a structured overall concept with competent contact points and coordination of medical care for long COVID patients emerged out of the statements of both groups.
conclusionThe results support an interdisciplinary, intersectoral and interprofessional stepped-care concept for long COVID in Germany with PCPs as the first contact persons, integration of specialized contact points and knowledge transfer. Therefore, it appears to be both reasonable and appropriate to establish regional networks with links between regional outpatient medical care structures and the university medical sector.
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