ReviewCurrent neurology and neuroscience reports2022
Moving the Dial Toward Equity in Parkinson's Disease Clinical Research: a Review of Current Literature and Future Directions in Diversifying PD Clinical Trial Participation.
Review in Current neurology and neuroscience reports, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 2 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
25 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Mechanisms of inequitable access to parkinson's disease care: a critical interpretive synthesis.International journal for equity in health · 2025Pooled it
- Caregivers' burden and deep brain stimulation for Parkinson disease: A systematic review of qualitative studies.European journal of neurology · 2024Pooled it
- IN-HOME-PDCaregivers: The effects of a combined home visit and peer mentoring intervention for caregivers of homebound individuals with advanced Parkinson's disease.Parkinsonism & related disorders · 2023Trial
- Implementation of a novel strategy to increase participation of Black and Hispanic people in parkinsonism research.Journal of Parkinson's disease · 2026Article
- Practical approaches to inclusive recruitment practices in Parkinson's disease research.Journal of Parkinson's disease · 2026Article
- Exploring the Facilitators and Barriers of Adherence to Mediterranean-Ketogenic Dietary Interventions in Parkinson's Disease: A Qualitative Study.Current developments in nutrition · 2025Article
- Should old acquaintance be forgot: A call for recognition and inclusion of advanced Parkinson's disease patients & care partners in evolving research models.Parkinsonism & related disorders · 2025Article
- Parkinson's Disease: Bridging Gaps, Building Biomarkers, and Reimagining Clinical Translation.Cells · 2025Review
- Barriers and facilitators to Parkinson's disease research participation amongst underrepresented groups.BMC research notes · 2025Article
- Improving recruitment and retention of people with Parkinson's disease to clinical studies: A scoping review.Journal of Parkinson's disease · 2025Article
- Community engagement studios to improve racial diversity and health equity in Parkinson's.Journal of clinical and translational science · 2025Article
- A model to address healthcare gaps and poor research participation in Hispanic patients with Parkinson's disease.Frontiers in aging neuroscience · 2025Article
- The Black and African American Connections to Parkinson's Disease (BLAAC PD) study protocol.BMC neurology · 2024Article
- Sexual Orientation, Gender Identity, and Experiences During, Awareness of, and Attitudes Toward Research for People With Parkinson Disease.Neurology. Clinical practice · 2024Article
- An Ethnographic Study of Patient Life Experience in Early-Stage Parkinson's Disease in the United States and Germany.Neurology and therapy · 2024Article
- Neuropsychological and social predictors of participation in a deep brain stimulation study of Parkinson's disease and dystonia.medRxiv : the preprint server for health sciences · 2024Article
- Specific Medication Literacy in Older Adults with Asthma.The journal for nurse practitioners : JNP · 2024Article
- Underrepresented and Underserved Populations in Neurological Research.Seminars in neurology · 2024Article
- Patient and Public Involvement and Engagement in the Development of a Platform Clinical Trial for Parkinson's Disease: An Evaluation Protocol.Journal of Parkinson's disease · 2024Article
- Gender-aware Parkinson's care: a design-based study of patient perspectives on gender norms and gender-sensitive care.EClinicalMedicine · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
2 authors.
Funding
Abstract
purpose of reviewParkinson's disease (PD), the second most common neurodegenerative disease, has a worldwide prevalence projected at 12 million by 2040. While PD has been extensively researched, our understanding of the disease is based on research studies that include mostly participants of European descent. The lack of diversity in clinical trial enrollment has limited the generalizability of scientific discoveries in the field. Here, we discuss contributors to racial and ethnic disparities in PD clinical research enrollment, summarize recently proposed and tested interventions, and propose next steps to increase equity and representation in PD research. RECENT
findingsEnrollment in PD clinical research is vulnerable to upstream disparities and inequities from PD awareness to access to specialized PD centers. While additional research is still needed, recent studies have identified some potential strategies for increasing underrepresented minority (URM) recruitment including increasing the availability of linguistically and culturally diverse research materials and team members, partnering with community organizations, and forming relationships with URM-serving community physicians. To move the dial toward equity in PD research, it will be necessary to implement known successful strategies and further investigate additional contributors to the underrepresentation of URMs in PD clinical research while developing and testing interventions to address these factors.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.