ArticleBMJ open2022
Broadening the diversity of consumers engaged in guidelines: a scoping review.
Article in BMJ open, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 3 of them syntheses that pooled it.
What it found
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Who cites it
12 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Evidence-based clinical practice guidelines for the management of acute ankle injuries according to: a PRISMA systematic review and quality appraisal with AGREE II.BMC musculoskeletal disorders · 2024Pooled it
- Meaningful consumer involvement in cancer care: a systematic review on co-design methods and processes.JNCI cancer spectrum · 2024Pooled it
- Public participation in decisions about measures to manage the COVID-19 pandemic: a systematic review.BMJ global health · 2024Pooled it
- Barriers and Facilitators to Interest-Holder Engagement in Health Guideline Development: A Qualitative Evidence Synthesis.Campbell systematic reviews · 2026Review
- The Extent and Nature of Lived Experience Engagement in the Development of Australian Clinical Practice Guidelines, 2014-2025: A Scoping Review.The Medical journal of Australia · 2026Article
- Community engagement in health guidelines and other normative products: a methodological review.Bulletin of the World Health Organization · 2025Review
- Strengthening health literacy research through consumer engagement: a qualitative analysis of building and maintaining partnership.Health promotion international · 2025Article
- The participation of lifeworld experts in Delphi processes: A reflection on method and practice.MethodsX · 2025Review
- Clinical practice guideline recommendations can promote or undermine health equity.Clinical and public health guidelines · 2025Article
- Reporting checklists in neuroimaging: promoting transparency, replicability, and reproducibility.Neuropsychopharmacology : official publication of the American College of Neuropsychopharmacology · 2024Review
- Consumer engagement in living evidence "a beautiful opportunity": International qualitative study with patients and methodologists.Clinical and public health guidelines · 2024Article
- [Participation of Patients in the Development of Clinical Guidelines: A Selective Country Comparison in a Narrative Review].Gesundheitswesen (Bundesverband der Arzte des Offentlichen Gesundheitsdienstes (Germany)) · 2023Review
Corrections and comments
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Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundGuideline developers are encouraged to engage patients, carers and their representatives ('consumers') from diverse backgrounds in guideline development to produce more widely applicable guidelines. However, consumers from diverse backgrounds are infrequently included in guidelines and there is scant research to support guideline developers to do this.
objectivesTo identify principles and approaches to broaden the diversity of consumers engaged in guideline development.
designScoping review and semi-structured interviews.
methodsWe conducted comprehensive searches to March 2020 for studies, reports and guidance documents. Inclusion criteria included the terms 'consumer' (patients, carers and their representatives), 'diversity' (defined using the PROGRESS-PLUS mnemonic) and 'consumer engagement' (the active involvement of consumers at any stage of guideline development). We also conducted four interviews with consumers and guideline developers. We used descriptive synthesis to identify themes, and summarised information about implemented approaches used to broaden diversity of consumers in guidelines.
resultsFrom 10 included documents, we identified eight themes. Themes covered general engagement concepts (Respectful partnerships; Recruitment; Expectations, process and review); specific concepts about guideline development group (GDG) engagement (Characteristics of guideline personnel; Consumers' role, characteristics and prominence; Preparing and supporting consumers); and other (non-GDG) approaches (Online methods; Consultations and research-based approaches). The most commonly included PROGRESS-PLUS categories were Disability, Race/culture/ethnicity/language, Place of residence and Other vulnerable (eg, 'disadvantaged groups'). Each theme included the views of both consumers and guideline developers. We found descriptions of 12 implemented engagement approaches to broaden diversity of consumers in guidelines.
conclusionsRelationship-building, mitigating power imbalances and meeting consumers where they are at underpin our findings. Engaging with diverse groups may require greater attention to building formal, respectful partnerships and employing inclusive engagement methods.
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