ArticleSpinal cord2022
Australian arm of the International Spinal Cord Injury (Aus-InSCI) Community Survey: 2. Understanding the lived experience in people with spinal cord injury.
Article in Spinal cord, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
21 citing papers in PubMed, 1 synthesis or guideline pooled it, 31 citations in OpenAlex.
- Prevalence of opioid use in adults with spinal cord injury: A systematic review and meta-analysis.The journal of spinal cord medicine · 2025Pooled it
- Living with spinal cord injury in the community of Bangladesh: a comprehensive analysis using the ICF framework.Journal of rehabilitation medicine · 2026Article
- An update on sleep disordered breathing in spinal cord injury.Current opinion in pulmonary medicine · 2025Review
- Prescription opioid dispensing rates in the 12-months post-discharge after acute spinal cord injury: An observational study.The journal of spinal cord medicine · 2025Observational
- Capturing Community Living Experiences and Health of Korean Community Spinal Cord Injury Population: A Cross-Sectional Survey.International journal of environmental research and public health · 2025Article
- What drives psychotherapists' willingness to treat individuals with spinal cord injury? A cross-sectional study from Germany.Frontiers in public health · 2025Article
- Leisure-time Physical Activity in People with Spinal Cord Injury: A Population-based Community Sample.Topics in spinal cord injury rehabilitation · 2025Article
- A Scoping Review on the Influence of Housing on the Health and Well-Being of People with a Spinal Cord Injury/Dysfunction.Healthcare (Basel, Switzerland) · 2024Article
- Priorities of the Pediatric Spinal Cord Injury Population: An International Study on Patient-Reported Outcome Measures.Children (Basel, Switzerland) · 2024Article
- Determinants of low satisfaction with life among wheelchair users with spinal cord injury in Egypt: a cross-sectional study.BMC neurology · 2024Article
- Unmet healthcare needs, access to services and experiences with health providers among persons with spinal cord injury in Australia.Spinal cord · 2024Article
- Article
- Review
- Using the consolidated Framework for Implementation Research to integrate innovation recipients' perspectives into the implementation of a digital version of the spinal cord injury health maintenance tool: a qualitative analysis.BMC health services research · 2024Article
- Article
- Co-design of the Spinal Cord Injury Health Maintenance Tool to Support Self-Management: A Mixed-Methods Approach.Topics in spinal cord injury rehabilitation · 2024Article
- Leisure-Time Physical Activity Participation in Middle-Aged and Older Adults With a Spinal Cord Injury in Australia.International journal of public health · 2024Article
- Australian arm of the International Spinal Cord Injury (Aus-InSCI) community survey: 1. population-based design, methodology and cohort profile.Spinal cord · 2023Article
- Australian arm of the International Spinal Cord Injury (Aus-InSCI) Community Survey: 3. Drivers of quality of life in people with spinal cord injury.Spinal cord · 2023Article
- Investigating Dynamics of the Spinal Cord Injury Adjustment Model: Mediation Model Analysis.Journal of clinical medicine · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
12 authors at 9 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
STUDY
designCross-sectional survey.
objectivesTo identify common problems across key domains of functioning, health and wellbeing, as well as evaluate self-reported quality of life (QoL) by people with SCI, examining differences by age, gender, injury characteristics and level of mobility.
settingData from four state-wide SCI clinical services, one government insurance agency and three not-for-profit consumer organisations.
methodsParticipants were 18 years or over with SCI and at least 12 months post-injury, recruited between Mar'18 and Jan'19. The Aus-InSCI questionnaire comprised 193 questions, including socio-demographics, SCI characteristics, body functions and structures, activities and participation, environmental and personal factors, and appraisal of health and well-being. General linear model was used to examine differences in functioning and QoL.
resultsParticipants (mean age 57 years, range 19-94 years) with tetraplegia and/or complete injuries had more health problems, activity/participation problems and environmental barriers. However, self-rated overall QoL did not differ for injury level or completeness. Participants with more recent injuries exhibited lower independence levels, more mental health problems and poorer satisfaction with self and their living conditions. Major activity/participation problems related to intimate relationships and accessing public transportation. Less than half of the working age population were engaged in paid work. The top two environmental barriers frequently related to accessing public places or homes and unfavourable climatic conditions.
conclusionsThis large, comprehensive community survey draws a detailed picture of the lived experience of people with SCI in Australia, identifying priority needs, gaps in services and barriers to achieving a full and satisfying life.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.