ArticleJournal of nephrology2022
Patient perspectives on chronic kidney disease and decision-making about treatment. Discourse of participants in the French CKD-REIN cohort study.
Article in Journal of nephrology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.
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7 citing papers in PubMed.
- Health-related quality of life in nondialysis CKD patients: a comprehensive description of five-year trajectories among the CKD-REIN cohort.BMC nephrology · 2026Article
- Clinical and Financial Impacts of Late Referral in Patients With Chronic Kidney Disease: A Narrative Review.Cureus · 2025Review
- A Pilot Clinical Trial of a Nutrition Education Program on Quality of Life in CKD.Clinical journal of the American Society of Nephrology : CJASN · 2025Article
- Perspectives of adult advanced pre-dialysis chronic kidney disease patients about kidney replacement therapy in three referral hospitals in Rwanda.BMC nephrology · 2025Article
- Harnessing Social Media Data to Understand Information Needs About Kidney Diseases and Emotional Experiences With Disease Management: Topic and Sentiment Analysis.Journal of medical Internet research · 2025Article
- Factors associated with patient activation among patients with diabetes on hemodialysis: a multicenter cross-sectional study from a developing country.BMC nephrology · 2024Article
- Stigma and related factors among renal dialysis patients in China.Frontiers in psychiatry · 2023Article
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8 authors.
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Abstract
backgroundLittle is known about psychological issues in patients with chronic kidney disease (CKD) facing transition to kidney failure and the involvement of their family in decision-making about kidney replacement therapy (KRT). This study investigated patients' experience of their illness, their views on KRT choice and their perception of the influence of their relatives.
methodsWe conducted a qualitative study nested in the CKD-REIN prospective cohort study which included non-dialysis CKD patients from 40 nationally representative nephrology clinics. Among 1555 patients who returned a self-administered questionnaire, we used purposive sampling to select 50 participants who underwent semi-structured phone interviews with a psychologist.
resultsThe patients' mean age was 62.2 ± 12 years, 42% were women, and 68% had CKD stage 4-5. The analysis yielded four lexical classes: "illness rhythm", "considering dialysis", "family and transplantation", and "disease, treatment choice and introspection". When experiencing few or mild symptoms, patients tended to avoid thinking about CKD, for the prospect of dialysis was the most stressful part of their experience. Surprisingly, the importance of family appeared when they talked about transplantation decision-making, but not about choice of dialysis modality.
conclusionsCognitive avoidance seems common in patients with advanced CKD. Transplantation and dialysis decision-making appear to be two distinct processes, with different levels of family involvement. More research is needed to better understand the frequency and impact of cognitive avoidance on patients' well-being and decision-making.
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