Evidence map›Paper›PMID 35689281›Full record

ArticleBMC health services research2022

Creating 'Partnership in iSupport program' to optimise family carers' impact on dementia care: a randomised controlled trial protocol.

Lily Xiao, Ying Yu, Julie Ratcliffe, Rachel Milte, Claudia Meyer, Michael Chapman, Langduo Chen, Shahid Ullah, Alison Kitson, Andre Queiroz De Andrade and 9 more

Open access · goldAbstract readClinical Trial Protocol
PubMed Full text at PMC Publisher
In one paragraph

Article in BMC health services research, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
0.9field-weighted citation impact, top 28% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 6 citations in OpenAlex.

  1. Effects of a virtual iSupport Program on carers and people with dementia.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025
    Trial
  2. Article
  3. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

19 authors at 11 institutions in 1 country.

Lily XiaoCollege of Nursing and Health Sciences, Flinders University, Bedford Park, South Australia, 5042, Australia. lily.xiao@flinders.edu.au.ORCID http://orcid.org/0000-0002-4631-2443
Ying YuCollege of Nursing and Health Sciences, Flinders University, Bedford Park, South Australia, 5042, Australia.
Julie RatcliffeCollege of Nursing and Health Sciences, Flinders University, Bedford Park, South Australia, 5042, Australia.
Rachel MilteCollege of Nursing and Health Sciences, Flinders University, Bedford Park, South Australia, 5042, Australia.
Claudia MeyerCollege of Nursing and Health Sciences, Flinders University, Bedford Park, South Australia, 5042, Australia.
Michael ChapmanCanberra Health Services, ACT, Canberra, Australia.
Langduo ChenCollege of Nursing and Health Sciences, Flinders University, Bedford Park, South Australia, 5042, Australia.
Shahid UllahCollege of Medicine and Public Health, Flinders University, Bedford Park, South Australia, Australia.
Alison KitsonCollege of Nursing and Health Sciences, Flinders University, Bedford Park, South Australia, 5042, Australia.
Andre Queiroz De AndradeQuality Use of Medicines and Pharmacy Research Centre, Clinical and Medical Sciences, University of South Australia, Adelaide, Australia.
Elizabeth BeattieQueensland Dementia Training Study Centre, School of Nursing, Queensland University of Technology, Brisbane, QLD, Australia.
Henry BrodatyCentre for Healthy Brain Ageing (CHeBA), School of Psychiatry, University of New South Wales, Sydney, NSW, Australia.
Sue McKechnieCommunity Services, Resthaven Incorporated, Wayville, South Australia, Australia.
Lee-Fay LowFaculty of Health Sciences, University of Sydney, Sydney, Australia.
Tuan Anh NguyenSocial Gerontology Division, National Ageing Research Institute, Melbourne, Australia.
Craig WhiteheadSouthern Adelaide Local Health Network, Adelaide, South Australia, Australia.
Bianca BrijnathSocial Gerontology Division, National Ageing Research Institute, Melbourne, Australia.
Ronald SinclairFaculty of Sciences, University of Adelaide, Adelaide, Australia.
Diana VossSouthern Adelaide Local Health Network, Adelaide, South Australia, Australia.
Flinders University · AUWomen's and Children's Health Network · AUAct Health · AUCurtin University · AUNational Ageing Research Institute · AUQueensland University of Technology · AUResthaven Incorporated · AUThe University of Adelaide · AUThe University of Sydney · AUUniversity of South Australia · AUUNSW Sydney · AU

Funding

Dementia Collaborative Research Centres, Australia World-Class Research Project GrantsNational Health and Medical Research Council MRF2008321
6 · The paper itself

Abstract

backgroundThe majority of people with dementia are cared for by their family members. However, family carers are often unprepared for their caring roles, receiving less education and support compared with professional carers. The consequences are their reduced mental and physical health and wellbeing, and that of care recipients. This study protocol introduces the 'Partnership in iSupport program' that includes five interventional components: managing transitions, managing dementia progression, psychoeducation, carer support group and feedback on services. This health services research is built on family carer and dementia care service provider partnerships. The aims of the study are to evaluate the effectiveness, cost-effectiveness and family carers' experiences in the program.

methodsA multicentre randomised controlled trial will be conducted with family carers of people living with dementia from two tertiary hospitals and two community aged care providers across three Australian states. The estimated sample size is 185 family carers. They will be randomly assigned to either the intervention group or the usual care group. Outcomes are measurable improvements in quality of life for carers and people with dementia, caregiving self-efficacy, social support, dementia related symptoms, and health service use for carers and their care recipients. Data will be collected at three time points: baseline, 6 months and 12 months post-initiation of the intervention. DISCUSSION: This is the first large randomised controlled trial of a complex intervention on health and social care services with carers of people living with dementia in real-world practice across hospital and community aged care settings in three Australian states to ascertain the effectiveness, cost-effectiveness and carers' experiences of the innovative program. We expect that this study will address gaps in supporting dementia carers in health and social care systems while generating new knowledge of the mechanisms of change in the systems. Findings will strengthen proactive health management for both people living with dementia and their carers by embedding, scaling up and sustaining the 'Partnership in iSupport program' in the health and social care systems.

trial registrationThe Australian New Zealand Clinical Trials Registry (ANZCTR). ACTRN12622000199718 . Registered February 4

Indexed as

CaregiversDementiaAgedAustraliaFamilyHumansMulticenter Studies as TopicQuality of LifeRandomized Controlled Trials as TopicCarersCommunity aged careCost-effectivenessDementiaHealth services researchKnowledge translationOnline educationQuality of lifeRandomised controlled trialVirtual social support

Identifiers

PMID35689281
PMCPMC9185883
OpenAlexW4281703215

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.