ArticleBMC women's health2022
Patients' and relatives' perspectives on best possible care in the context of developing a multidisciplinary center for endometriosis and adenomyosis: findings from a national survey.
Article in BMC women's health, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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Who cites it
15 citing papers in PubMed, 22 citations in OpenAlex.
- Trial
- Women with endometriosis: Experiences with pain management and views on optimal healthcare through the concept of health literacy.Women's health (London, England)Trial
- Comparative outcomes of abdominal wall endometriosis surgery: Specialized endometriosis surgeons versus general surgical teams.International journal of gynaecology and obstetrics: the official organ of the International Federation of Gynaecology and Obstetrics · 2026Article
- Living with adenomyosis and involuntary childlessness: a qualitative interview study.BMC women's health · 2026Article
- Exploring women's experiences of informational support provided by gynaecologists in endometriosis care: a qualitative study.BMJ open · 2026Article
- Effects of centralized multidisciplinary surgical endometriosis care: a retrospective 3-year follow-up cohort study.BMC women's health · 2026Article
- Information Needs of Culturally and Linguistically Diverse Women with Endometriosis in Australia: A Qualitative Study.International journal of environmental research and public health · 2026Article
- Barriers and Facilitators Affecting the Care of Patients with Endometriosis: A Scoping Review.Geburtshilfe und Frauenheilkunde · 2026Article
- Effects of comprehensive nursing interventions on pain, recovery, and sexual quality of life in patients with adenomyosis: a prospective cohort study.Frontiers in public health · 2026Article
- Experiences of disempowerment amongst endometriosis patients: Toward comprehensive care to address the psychosocial impact of chronic illness.Journal of health psychology · 2025Article
- Informational support for women with endometriosis: a scoping review.BMC women's health · 2025Article
- Women's experiences of living with adenomyosis and perceptions of the diagnostic journey: a scoping review.BMJ open · 2025Article
- Women's experiences of the diagnostic journey in uterine adenomyosis: a scoping review protocol.BMJ open · 2024Article
- Perceived challenges in treatment decision-making for endometriosis: healthcare professional perspectives.Health psychology and behavioral medicine · 2024Article
- Yearning for movement. A qualitative interview study exploring physical activity in the context of endometriosis-associated chronic pain.Women's health (London, England)Article
Corrections and comments
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Authors and funding
6 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundEndometriosis and adenomyosis are common benign conditions compromising both physical and psychological health, with a negative impact on quality of life. This survey aimed to establish what the users' perspectives are on best possible care in the context of developing a multidisciplinary center for endometriosis and adenomyosis in Norway.
methodsAn electronic questionnaire was developed in collaboration between the Norwegian Patient's Endometriosis Society (NPES) and gynecologists with special interest in endometriosis and adenomyosis. The questionnaire was distributed digitally to the members of NPES in May 2021.
results938 participants answered the questionnaire. Better patient information, long term therapeutic plans and integration of their partners into their care were the main concerns. Multidisciplinary care was a key issue for the majority, with (n = 775) 89% stating a need for a consultation with a psychologist, (n = 744) 86% at least one consultation with a nutritionist, (n = 733) 85% a physiotherapist, and (n = 676) 78% needing a sex therapist and (n = 935) 99,7% consider research and (n = 934) 99,8% consider quality assurance initiated by the endometriosis center to be important. The qualitative analysis of free text answers revealed a great need for updated and easily accessible information, meeting competent health care professionals and being taken seriously/listened to.
conclusionsThis survey shows similar perceptions and a high level of agreement regarding their needs amongst people with endometriosis and/or adenomyosis. This survey supports recommendations by the experts that endometriosis/adenomyosis care should be centralized in specialized, multidisciplinary centers. The results of the present work will be valuable for the future planning and development of a multidisciplinary endometriosis center.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.