ArticleBMC palliative care2022
Cross-cultural conceptualization of a good end of life with dementia: a qualitative study.
Article in BMC palliative care, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
13 citing papers in PubMed.
- Article
- Implementing a new approach to enhance palliative care for people with dementia in Aruba, Bonaire, and Curaçao: a mixed-methods study.BMC palliative care · 2025Article
- A Time to Die: Mexican Life Debates and the Paradox of Choice in Palliative Care.Culture, medicine and psychiatry · 2025Article
- Training for dementia care and support in rural and remote Australia: appraisals from a nationwide workforce survey.BMC geriatrics · 2025Article
- Advance care planning and quality of life: A qualitative interview study in people with young-onset dementia and their family caregivers.Palliative medicine · 2025Article
- The impact of end-of-life disability level on middle-aged and older adults' utilization of medical services.Frontiers in public health · 2025Article
- The components of best nursing care for well-dying in people with dementia: A scoping review.Journal of Korean gerontological nursing · 2024Review
- Palliative care in small-scale living facilities: a scoping review.BMC geriatrics · 2024Article
- A palliative care goals model for people with dementia and their family: Consensus achieved in an international Delphi study.Palliative medicine · 2024Article
- Good Death and Quality of End-of-Life Care in Patients with Coexisting Cancer and Dementia: Perspective of Bereaved Families.Palliative medicine reports · 2024Article
- Talking about Meaning and Loss with Relatives of Persons with Dementia: An Ethnographic Study in a Nursing Home.Geriatrics (Basel, Switzerland) · 2023Article
- Defining healthy longevity and dementia prevention campaigns have been tied to the ability to work.Journal of Alzheimer's disease reportsArticle
- Commentary: Can an effective end-of-life intervention for advanced dementia be viewed as moral?Alzheimer's & dementia (Amsterdam, Netherlands)Article
Corrections and comments
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Authors and funding
17 authors.
Funding
Abstract
backgroundResearch on the nature of a "good death" has mostly focused on dying with cancer and other life-limiting diseases, but less so on dementia. Conceptualizing common cross-cultural themes regarding a good end of life in dementia will enable developing international care models.
methodsWe combined published qualitative studies about end of life with dementia, focus group and individual interviews with the researchers, and video-conferencing and continuous email discussions. The interviews were audio-recorded and transcribed verbatim. The data were analyzed thematically, and the researchers developed common themes referring to their original studies.
resultsFourteen qualitative researchers representing 14 cross-cultural studies covering qualitative data of 121 people with dementia and 292 family caregivers. The researchers and data were from eight countries UK, The Netherlands, Japan, Portugal, Germany, Canada, Brazil, and Ireland. Three focus groups, five individual interviews, and video-conferencing were conducted and feedback on multiple iterations was gained by 190 emails between May 2019 and April 2020 until consensus was achieved. Nine cross-culturally common themes emerged from the discussions and shared interpretation of the data of persons with dementia and family caregivers. Three represent basic needs: "Pain and Symptoms Controlled," "Being Provided Basic Care," and "A Place like Home." Other themes were "Having Preferences Met," "Receiving Respect as a Person," "Care for Caregivers," "Identity Being Preserved," "Being Connected," and "Satisfaction with Life and Spiritual Well-being." "Care for Caregivers" showed the greatest difference in emphasis across cultures. Good relationships were essential in all themes.
conclusionsThe common cross-cultural themes comprise a framework underpinned by value placed on personhood and dignity, emphasizing that interdependency through relationships is essential to promote a good end of life with dementia. These themes and valuing the importance of relationships as central to connecting the themes could support care planning and further development of a dementia palliative care model.
trial registrationThe Graduate School and Faculty of Medicine Kyoto University (R1924-1).
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.