ArticleHospital pediatrics2022
Feasibility Testing of Tubes@HOME: A Mobile Application to Support Family-Delivered Enteral Care.
Article in Hospital pediatrics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
10 citing papers in PubMed, 11 citations in OpenAlex.
- Preventing respiratory illness in cerebral palsy: Results of a pilot randomized controlled trial.PloS one · 2025Trial
- Digital Health Technology Applications in Home Care for Children With Complex Medical Conditions: A Scoping Review.Journal of advanced nursing · 2026Article
- Pediatric Gastrostomy Educational Materials: A Health Literacy Assessment.Clinical pediatrics · 2026Article
- Leveraging Ergonomics and Human Factors (E/HF) for community impact: what have we learned about how to make a difference.Ergonomics · 2025Article
- Toward digital caregiving network interventions for children with medical complexity living in socioeconomically disadvantaged neighborhoods.JAMIA open · 2025Article
- Review
- Designing for caregiving networks: a case study of primary caregivers of children with medical complexity.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- An mHealth Design to Promote Medication Safety in Children with Medical Complexity.Applied clinical informatics · 2024Article
- Co-Design with Patients for Improving Patient Safety: Strategies, Barriers and pitfalls.Proceedings of the Human Factors and Ergonomics Society ... Annual Meeting. Human Factors and Ergonomics Society. Annual meeting · 2023Article
- What makes a home? Designing home personas to represent the homes of families caring for children with medical complexity.Applied ergonomics · 2023Article
Corrections and comments
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Authors and funding
13 authors at 2 institutions in 1 country.
Funding
Abstract
backgroundAssistance from medical devices is common for children with medical complexity (CMC) but introduces caregiving challenges. We tested the feasibility of "Tubes@HOME," a mobile application supporting CMC family-delivered care using enteral care as a model.
methodsCaregivers of CMC with enteral tubes participated in a 30-day feasibility study of Tubes@HOME November 2020 through January 2021. Tubes@HOME was available on mobile devices and designed to support collaborative care and tracking over time. Key features include child profile, caregiving network management, care routines, feedback loop, and action plans. Care routines delineated nutrition, medication, and procedural tasks needed for the child: frequencies, completions, and reminders. Metadata summarized feature use among users. Feasibility was evaluated with postuse questionnaires and interviews. Measures of Tubes@HOME's usability and usefulness included the NASA Task Load Index (TLX), System Usability Scale (SUS), and Acceptability and Use of Technology Questionnaire (AUTQ).
resultsAmong n = 30 children, there were 30 primary (eg, parent) and n = 22 nonprimary caregivers using Tubes@HOME. Children had a median (IQR) 10 (5.5-13) care routines created. For care routines created, 93% were marked complete at least once during the study period, with participants engaging with routines throughout study weeks 2 to 4. Results (mean [SD]) indicated low mental workload (TLX) 30.9 (12.2), good usability (SUS) 75.4 (14.7), and above-average usefulness (AUTQ) 4.0 (0.7) associated with Tubes@HOME, respectively. Interviews contextualized usefulness and suggested improvements.
conclusionsLongitudinal use of Tubes@HOME among caregiving networks appeared feasible. Efficacy testing is needed, and outcomes could include reliability of care delivered in home and community.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.