ArticleBMC palliative care2022
End of life care in UK care homes during the COVID-19 pandemic: a qualitative study.
Article in BMC palliative care, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Who cites it
8 citing papers in PubMed.
- Lessons learned from social isolation in nursing homes during the COVID-19 epidemic-group interview with relatives with negative experiences.BMC geriatrics · 2026Article
- Understanding the Lived Experience of Family Caregivers of Loved Ones in Long-Term Care During COVID-19 Through Art.International journal of environmental research and public health · 2026Article
- The impact of the COVID-19 pandemic on end-of-life care in LTCFs in England: A qualitative study of LTCF staff experiences.Palliative care and social practice · 2026Article
- Dying in residential care homes during the early COVID-19 pandemic: a qualitative interview study.BMC geriatrics · 2025Article
- Long term care facilities in England during the COVID-19 pandemic-a scoping review of guidelines, policy and recommendations.BMC geriatrics · 2024Article
- Hospice and Palliative Care during Disasters: A Systematic Review.Healthcare (Basel, Switzerland) · 2023Review
- Hospice Aide Visits among Nursing Home Residents During the Early Months of the COVID-19 Pandemic.Journal of the American Medical Directors Association · 2023Observational
- Provision of palliative and end-of-life care in UK care homes during the COVID-19 pandemic: A mixed methods observational study with implications for policy.Frontiers in public health · 2023Observational
Corrections and comments
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Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeTo report the experiences of End of Life (EoL) care in UK care homes during the COVID-19 pandemic.
methodsUK care home staff and family carers of residents in care home took part in remote, semi-structured interviews from October to November 2020, with 20 participants followed-up in March 2021. Interviews were conducted via telephone or online platforms and qualitatively analysed using inductive thematic analysis.
resultsForty-two participants (26 family carers and 16 care home staff) were included in a wider qualitative study exploring the impact on dementia care homes during the pandemic. Of these, 11 family carers and 9 care home staff participated in a follow-up interview. Following descriptive thematic analysis, three central themes concerning EoL care during the pandemic specifically, were conceptualised and redefined through research team discussions: 1) Wasting or losing time; 2) Maintaining control, plans and routine; and 3) Coping with loss and lack of support. Lack of suitable, meaningful visits with people with dementia in care homes resulted in negative feelings of guilt and abandonment with both family carers and care home staff. Where families experienced positive EoL visits, these appeared to breach public health restrictions at that time.
conclusionIt is recommended that care homes receive clear guidance from the government offering equitable contact with relatives at EoL to all family members, to support their grieving and avoid subsequent negative impacts to emotional wellbeing.
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