ArticleFrontiers in sociology2022
Understanding the Role of Stigma and Misconceptions in the Experience of Epilepsy in India: Findings From a Mixed-Methods Study.
Article in Frontiers in sociology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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15 citing papers in PubMed, 25 citations in OpenAlex.
- The prevalence and determinants of epilepsy in Ghana: A population-based study in two districts using a three-stage approach.Epilepsia · 2026Article
- The Global Epilepsy Needs Study (GENS): A mixed-methods, multi-country exploration of the unmet psychosocial and everyday needs of people with epilepsy.Epilepsia open · 2026Article
- Understanding the psychosocial impact and healthcare experiences of people living with epilepsy in the West Bank, Palestine.BMC health services research · 2026Article
- Article
- Epilepsy in children and young people as a stigma throughout history: identifying cultural, religious and educational factors to design strategies for contemporary social inclusion.Frontiers in neurology · 2026Review
- Epilepsy: Bridging Epidemiological Landscapes, Molecular Mechanisms, and Emerging Precision Therapeutics.Neuropsychiatric disease and treatment · 2026Review
- Beliefs, misconceptions, and practices related to epilepsy among adults in Sudan: A large-scale cross-sectional study.Epilepsia open · 2025Article
- Prevalence of epilepsy and the epilepsy treatment gap in Bauchi, Northeast Nigeria: a cross-sectional study of two communities.BMJ open · 2025Article
- Epilepsy-Related Misconceptions, Cultural Beliefs, and Their Impact on Health Outcomes: A Systematic Review.Cureus · 2025Review
- Epilepsy Disclosure Before Marriage: The Collision of Stigma and Ethics.Pakistan journal of medical sciences · 2025Article
- Conceptual framework to provide culturally congruent care to epilepsy patients in selected rural communities in South Africa.Health SA = SA Gesondheid · 2024Article
- Epilepsy in Asian countries.Acta epileptologica · 2023Review
- Health related quality of life in a Saudi population of patients with epilepsy.Neurosciences (Riyadh, Saudi Arabia) · 2023Article
- Health-related quality of life in children with epilepsy: a concept analysis.Child health nursing research · 2023Article
- Quality of life and its relation with sleep habits of children with epilepsy from Eastern India.Journal of education and health promotion · 2023Article
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Authors and funding
2 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
It is surprising that although 12 million people in India suffer from epilepsy this remains a thoroughly under-researched area in the sociology of health and practice. We address this intellectual and policy neglect by reviewing the social, psychological and legal challenges governing the lives of people living with epilepsy (PWE) by paying particular attention to negotiations in arranged marriages and employment. Drawing on the analytical frameworks of the sociological study of stigma, critical race theory and paying attention to the cultural models of health and suffering, this study utilized a combination of (online) survey data (
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