Evidence map›Paper›PMID 35629226›Full record

ArticleJournal of personalized medicine2022

Measuring Quality of Life in Parkinson's Disease-A Call to Rethink Conceptualizations and Assessments.

Maria Stührenberg, Carolin S Berghäuser, Marlena van Munster, Anna J Pedrosa Carrasco, David J Pedrosa, On Behalf Of The iCARE-Pd Consortium

Abstract read
In one paragraph

Article in Journal of personalized medicine, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. Pooled it
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  4. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Maria StührenbergDepartment of Neurology, University Hospital Marburg, 35043 Marburg, Germany.
Carolin S BerghäuserDepartment of Neurology, University Hospital Marburg, 35043 Marburg, Germany.
Marlena van MunsterDepartment of Neurology, University Hospital Marburg, 35043 Marburg, Germany.
Anna J Pedrosa CarrascoResearch Group Medical Ethics, Philipps-University Marburg, 35043 Marburg, Germany.ORCID 0000-0002-4757-9019
David J PedrosaDepartment of Neurology, University Hospital Marburg, 35043 Marburg, Germany.
On Behalf Of The iCARE-Pd Consortium

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Parkinson's disease (PD) is a chronic condition that considerably impacts the perception of quality of life (QoL) in both patients and their caregivers. Modern therapeutic approaches and social efforts strive at maintaining and promoting QoL. It has emerged as a fundamental parameter for clinical follow-up and poses one of the most important endpoints in scientific and economic evaluations of new care models. It is therefore of utmost importance to grasp concepts of QoL in a meaningful way. However, when taking a look at the origin of our modern understanding of QoL and existing methods for its measurement in PD patients, some aspects seem to lack sufficient appreciation. This article elaborates on how the perception of health and QoL have changed over time and discuss whether current understandings of both are reflected in the most commonly applied assessment methods for people with PD.

Indexed as

assessmentmeasurementopinionParkinson’s diseasequality of life

Identifiers

PMID35629226
PMCPMC9148042

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.