SynthesisInternational journal of environmental research and public health2022
The Young Carers' Journey: A Systematic Review and Meta Ethnography.
Synthesis in International journal of environmental research and public health, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
23 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Children as next of kin's experiences, practices, and voice in everyday life: a systematic review of studies with Norwegian data (2010-2022).Scandinavian journal of public health · 2025Pooled it
- A systematic review and meta-analysis of randomized controlled trials to reduce burden, stress, and strain in informal stroke caregivers.Clinical rehabilitation · 2024Pooled it
- Recruitment of Adolescent Young Carers to a Psychosocial Support Intervention Study in Six European Countries: Lessons Learned from the ME-WE Project.International journal of environmental research and public health · 2023Trial
- Impact of chronic pain on the families of U.S. adults.Pain reports · 2026Article
- Young adults' lived experiences of parental cancer: a qualitative evidence synthesis.International journal of nursing studies advances · 2026Review
- Caring Across Generations: The Urgent Need to Support Young Carers in Canada's Aging Population.Canadian geriatrics journal : CGJ · 2026Article
- Exploring the Experiences of Caring for a Family Member With Intellectual Disabilities Displaying Behaviours That Challenge and/or Mental Health Difficulties Within the United Kingdom: A Meta-Ethnographic Review.Journal of applied research in intellectual disabilities : JARID · 2026Review
- Adult-Centred Systems, Youth-Centred Needs: A Qualitative Study of Canadian Caregiving Service Providers' Readiness to Support Young Caregivers.International journal of environmental research and public health · 2026Article
- The complexity of caregiving amid challenges: experiences of families with young caregivers.Revista da Escola de Enfermagem da U S P · 2026Article
- Validation of the Psychometric Properties of the German Version of OBI-Care in Informal Caregivers of Stroke Survivors.Journal of clinical medicine · 2025Article
- Family Assistance Experiences of Adolescents in Marriage Immigrant Families.Children (Basel, Switzerland) · 2025Article
- Young Carers in Early Childhood-How Are Young Carers Represented in Broader Literature and What Factors Influence Dominant Representations of Young Carers in Early Childhood in the UK?Healthcare (Basel, Switzerland) · 2025Review
- The Need for Health Systems to Engage With and Support Youth who are Caregivers-A Lived Experience Perspective From Young Carers.Journal of patient experience · 2025Article
- Unveiling the invisible: a qualitative interview study on the impact of young onset Parkinson's disease on (ex-partners).Journal of neurology · 2024Article
- A life marked by early school leaving: gendered working life paths linked to health and well-being over 40 years.BMC public health · 2024Article
- Understanding Experiences of Caregivers of Spouses With Dementia During Caregiver Health Care Emergencies.The Gerontologist · 2024Article
- Article
- The experience of young carers in Australia: a qualitative systematic review and meta-ethnographic synthesis.Australian journal of psychology · 2024Review
- Article
- Young carers.CMAJ : Canadian Medical Association journal = journal de l'Association medicale canadienne · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Despite growing international interest, the caregiving body of literature lacks a recent understanding of young carers' experiences and their contact with the health care system. We conducted a systematic review of qualitative studies to (1) synthesize more recent qualitative evidence on young carers' experience, and (2) to identify how these young carers interact with the health care system in their caregiving role. Using a meta-ethnographic synthesis, a total of 28 empirical studies met inclusion. Key findings helped inform an overarching framework of the experience of young carers as illustrated by a journey map. The journey map is a visual depiction of the stages these young carers go through when in a caregiving role framed by three themes: (1) encountering caregiving; (2) being a young caregiver, and (3) moving beyond caregiving. The caregiving experience is perceived by young people as challenging and complex, which could be improved with more informational navigation and emotional support. Understanding these experiences provides insight into gaps in health services and potential solutions that align with the stages outlined in the journey map.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.