Evidence map›Paper›PMID 35624439›Full record

Observational studyBMC pediatrics2022

Concordance between patient-centered and adaptive behavior outcome measures after applied behavior analysis for autism.

Kristen R Choi, Amin D Lotfizadah, Bhumi Bhakta, Paula Pompa-Craven, Karen J Coleman

Open access · goldAbstract readObservational Study
PubMed Full text at PMC Publisher
In one paragraph

Observational study in BMC pediatrics, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
1.3field-weighted citation impact, top 22% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed, 12 citations in OpenAlex.

  1. Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 3 institutions in 1 country.

Kristen R ChoiUCLA School of Nursing, 700 Tiverton Ave, Los Angeles, CA, 90049, USA. krchoi@ucla.edu.
Amin D LotfizadahEasterseals Southern California, 1063 McGaw Avenue, Suite 100, Irvine, CA, 92614, USA.
Bhumi BhaktaDepartment of Research & Evaluation, Kaiser Permanente Southern California, 100 S. Los Robles, Pasadena, CA, 91101, USA.
Paula Pompa-CravenEasterseals Southern California, 1063 McGaw Avenue, Suite 100, Irvine, CA, 92614, USA.
Karen J ColemanDepartment of Research & Evaluation, Kaiser Permanente Southern California, 100 S. Los Robles, Pasadena, CA, 91101, USA.
Easterseals · USKaiser Permanente · USUniversity of California, Los Angeles · US

Funding

Stakeholder-Partnered Implementation Research and Innovation Translation (SPIRIT) programK12HS026407 · AHRQ · UNIVERSITY OF CALIFORNIA LOS ANGELES · PI GOULD, MICHAEL K, ONG, MICHAEL K · 2018 to 2022
$3.7M
AHRQ HHS K12 HS026407
6 · The paper itself

Abstract

backgroundApplied behavior analysis (ABA) is an evidence-based approach to autism spectrum disorder that has been shown in clinical trials to improve child functional status. There is substantial focus in ABA on setting and tracking individualized goals that are patient-centered, but limited research on how to measure progress on such patient-centered outcomes. PURPOSE: The purpose of this investigation was to assess concordance between patient-centered and standard outcome measures of treatment progress in a real-world clinical sample of children receiving ABA for autism spectrum disorder.

methodsThis observational study used a clinical sample of children ages 3 to 16 years (N = 154) who received 24 months of ABA from an integrated health system. Concordance between three outcome measures after ABA was assessed using a correlation matrix: (1) patient-centered measures of progress on individualized treatment goals, (2) caregiver-centered measure of progress on treatment participation goals, and (3) the Vineland Adaptive Behavior Scales adaptive behavior composite.

resultsThere was limited concordance among measures at both 12 and 24 months of ABA. None of the patient-centered measures showed significant positive correlation with adaptive behavior composite difference scores at either 12 or 24 months, nor did the caregiver measure. The percentage of children achieving clinically meaningful gain on patient-centered goal measures increased between 12 and 24 months of ABA, while the percentage of children achieving clinically meaningful gains in adaptive behavior declined during the same time period.

conclusionsIn a health system implementation of ABA, there was limited concordance between patient-centered and standard measures of clinically meaningful treatment progress for children with ASD. Clinicians should have ongoing dialogue with patients and parents/caregivers to ensure that interventions for ASD are resulting in progress towards outcomes that are meaningful to patients and families.

Indexed as

Applied Behavior AnalysisAutism Spectrum DisorderAutistic DisorderAdaptation, PsychologicalAdolescentChildChild, PreschoolHumansOutcome Assessment, Health CarePatient-Centered CareApplied behavior analysisAutism spectrum disorderConcordanceMeasurementPatient-centered outcomes

Identifiers

PMID35624439
PMCPMC9137129
OpenAlexW4281909043

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.