Evidence map›Paper›PMID 35621329›Full record

ArticleQualitative health research2022

"Into the Lion's Den": COVID-19 Experiences of Black Adults with Sickle Cell Disease.

Nadine S Matthie, Dora L Clayton-Jones, Coretta M Jenerette

Abstract read
In one paragraph

Article in Qualitative health research, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Article
  2. Article
  3. A Scoping Review of Social Determinants of Health and Pain Outcomes in Sickle Cell Disease.Pain management nursing : official journal of the American Society of Pain Management Nurses · 2025
    Article
  4. Article
  5. Article
  6. Individuals with Sickle Cell Disease Using SBAR as a Communication Tool: A Pilot Study.International journal of environmental research and public health · 2022
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Nadine S MatthieEmory University Nell Hodgson Woodruff School of Nursing, Atlanta, GA, USA.ORCID 0000-0002-9704-1073
Dora L Clayton-JonesMarquette University College of Nursing, Milwaukee, WI, USA.
Coretta M JeneretteUniversity of South Carolina College of Nursing, Columbia, SC, USA.

Funding

Hematopoietic Stem Cell Transplantation for Young Adults with Sickle Cell Disease - Clinical Coordinating CenterU01HL128566 · NHLBI · YALE UNIVERSITY · PI KRISHNAMURTI, LAKSHMANAN, WALTERS, MARK C · 2015 to 2019
$7.3M
Home-Based Self-Management of Chronic Pain in Adults with Sickle Cell Disease: Applying a Biopsychosocial and Technological ApproachR21NR019872 · NINR · EMORY UNIVERSITY · PI MATTHIE, NADINE · 2021 to 2022
$430k
NHLBI NIH HHS U01 HL128566NINR NIH HHS R21 NR019872
6 · The paper itself

Abstract

Adults living with sickle cell disease are at risk for experiencing severe illness from coronavirus disease 2019 (COVID-19) due to the complexity of their disease. Additionally, self-management and navigating the healthcare system may be challenging during the COVID-19 pandemic. Therefore, we conducted telephone interviews with 25 participants to explore the experiences of Black adults living with sickle cell disease during the early months of the pandemic in the United States. Three overarching themes characterize their experiences: management of sickle cell disease was further complicated by the pandemic, fear of the virus contributed to physical and social isolation, and employment and financial challenges affected well-being. The pandemic contributed to changes in health care maintenance and had a disproportionate impact on this population. Addressing social and structural determinants of health and disruptions in health care accessibility is critical to advancing health and health care equity for individuals living with sickle cell disease.

Indexed as

Anemia, Sickle CellCOVID-19AdultFearHumansPandemicsSocial IsolationUnited States

Identifiers

PMID35621329
PMCPMC13679847

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.