Evidence map›Paper›PMID 35620797›Full record

Trial reportThe American journal of hospice & palliative care2023

Insomnia Symptoms Among Hospice Family Caregivers: Prevalence and Association with Caregiver Mental and Physical Health, Quality of Life, and Caregiver Burden.

Lauren T Starr, Karla Washington, Miranda V McPhillips, Kyle Pitzer, George Demiris, Debra Parker Oliver

Open access · greenAbstract readRandomized Controlled Trial
In one paragraph

Trial report in The American journal of hospice & palliative care, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
2.9field-weighted citation impact, top 9% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed, 16 citations in OpenAlex.

  1. Article
  2. Article
  3. Examination of the relationship between the empathic tendencies and sleep quality of caregivers of cancer patients.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2025
    Article
  4. Article
  5. Article
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  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 2 institutions in 1 country.

Lauren T StarrNewCourtland Center for Transitions and Health, Department of Biobehavioral Health Sciences, University of Pennsylvania School of Nursing, Philadelphia, Philadelphia, PA, USA.ORCID 0000-0003-0988-2401
Karla WashingtonDivision of Palliative Medicine, Washington University in St. Louis School of Medicine, St. Louis, MO, USA.ORCID 0000-0002-1100-9524
Miranda V McPhillipsNewCourtland Center for Transitions and Health, Department of Biobehavioral Health Sciences, University of Pennsylvania School of Nursing, Philadelphia, Philadelphia, PA, USA.
Kyle PitzerDivision of Palliative Medicine, Washington University in St. Louis School of Medicine, St. Louis, MO, USA.
George DemirisNewCourtland Center for Transitions and Health, Department of Biobehavioral Health Sciences, University of Pennsylvania School of Nursing, Philadelphia, Philadelphia, PA, USA.ORCID 0000-0002-6318-5829
Debra Parker OliverDivision of Palliative Medicine, Washington University in St. Louis School of Medicine, St. Louis, MO, USA.ORCID 0000-0002-8354-0859
University of Pennsylvania · USWashington University in St. Louis · US

Funding

Individualized Care for At Risk Older AdultsT32NR009356 · NINR · UNIVERSITY OF PENNSYLVANIA · PI Lauren M Massimo, MARY D NAYLOR · 2007 to 2026
$7.8M
ACCESS_Access for Cancer Caregivers to Education and Support for Shared decisionmakingR01CA203999 · NCI · WASHINGTON UNIVERSITY · PI PARKER OLIVER, DEBRA · 2017 to 2021
$3.6M
Multicomponent Behavioral Sleep Intervention for Insomnia in Older Adults with Mild Cognitive ImpairmentK23NR018487 · NINR · UNIVERSITY OF PENNSYLVANIA · PI MCPHILLIPS, MIRANDA VARRASSE · 2019 to 2021
$496k
NCI NIH HHS R01 CA203999NINR NIH HHS K23 NR018487NINR NIH HHS T32 NR009356
6 · The paper itself

Abstract

backgroundPoor sleep exacerbates mental health problems and reduces quality-of-life (QOL) but prevalence of insomnia symptoms among hospice family caregivers and associations of poor sleep with caregiver health and QOL outcomes are not known.

objectiveTo describe prevalence of insomnia symptoms among hospice family caregivers and compare anxiety, depression, self-rated health, QOL, and caregiver burden between hospice family caregivers with and without insomnia symptoms.

methodsDescriptive sub-study using data collected during baseline interviews of hospice family caregivers involved in a randomized clinical trial in Midwestern United States (xxxxxxxx). Caregivers were dichotomized based on Insomnia Severity Index (ISI) scores (8+ indicated insomnia symptoms).

resultsAmong 57 hospice family caregivers, the mean ISI score was 8.2; nearly half (49.1%) experienced insomnia symptoms. Compared to caregivers without insomnia symptoms, caregivers with insomnia symptoms reported 2.4 times greater mean anxiety scores (4.7 vs 11.4); 3.5 times greater mean depression scores (3.1 vs 10.7); 2.1 times greater caregiver burden scores (5.6 vs 11.8); and 1.3 times lower self-rated health (3.5 vs 2.8); 1.3 times lower total QOL scores (29.3 vs 22.6); including differences in emotional QOL (7.9 vs 2.2), social QOL (7.2 vs 3.0), and physical QOL (7.4 vs 5.3).

conclusionsHospice family caregivers experience high prevalence of insomnia symptoms; caregivers with insomnia symptoms report worse anxiety, depression, caregiver burden, QOL, self-rated health. Clinicians must screen hospice caregivers for poor sleep and mental health and offer supportive interventions that improve their sleep and health. Policy makers must expand hospice benefits to better support family caregivers.

Indexed as

HospicesSleep Initiation and Maintenance DisordersCaregiver BurdenCaregiversDepressionHumansPrevalenceQuality of Lifeanxietycaregiver burdencaregiver healthdepressionfamily caregiverhospiceinsomniaquality of lifesleep

Identifiers

PMID35620797
PMCPMC9699902
OpenAlexW4281691223

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.