Evidence map›Paper›PMID 35618988›Full record

ArticleInternational journal of behavioral medicine2023

Quality of Life Among Family of Patients with Atopic Dermatitis and Psoriasis.

Ashley M Snyder, Adelheid U Brandenberger, Vanina L Taliercio, Bianca E Rich, Lisa B Webber, Abram P Beshay, Joshua E Biber, Rachel Hess, Jamie L W Rhoads, Aaron M Secrest

Abstract read
PubMed Publisher
In one paragraph

Article in International journal of behavioral medicine, 2023. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
4.2field-weighted citation impact, top 6% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed, 21 citations in OpenAlex.

  1. Mapping of Family Reported Outcome Measure (FROM-16) scores to EQ-5D: algorithm to calculate utility values.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2024
    Trial
  2. Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Article
  9. Review
  10. Review
  11. Review
  12. Article
  13. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors at 1 institution in 1 country.

Ashley M SnyderDepartment of Dermatology, University of Utah, Salt Lake City, UT, USA.ORCID http://orcid.org/0000-0002-1980-2092
Adelheid U BrandenbergerSchool of Medicine, University of Utah, Salt Lake City, UT, USA.ORCID http://orcid.org/0000-0001-7817-9774
Vanina L TaliercioDepartment of Dermatology, University of Utah, Salt Lake City, UT, USA.ORCID http://orcid.org/0000-0001-6226-3576
Bianca E RichSchool of Medicine, University of Utah, Salt Lake City, UT, USA.ORCID http://orcid.org/0000-0002-8519-8428
Lisa B WebberDepartment of Dermatology, University of Utah, Salt Lake City, UT, USA.ORCID http://orcid.org/0000-0002-0988-7782
Abram P BeshayDepartment of Dermatology, University of Utah, Salt Lake City, UT, USA.ORCID http://orcid.org/0000-0001-5859-0603
Joshua E BiberDepartment of Population Health Sciences, University of Utah, Salt Lake City, UT, USA.ORCID http://orcid.org/0000-0003-3996-1063
Rachel HessDepartment of Population Health Sciences, University of Utah, Salt Lake City, UT, USA.ORCID http://orcid.org/0000-0003-2545-8504
Jamie L W RhoadsDepartment of Dermatology, University of Utah, Salt Lake City, UT, USA.ORCID http://orcid.org/0000-0002-2859-4168
Aaron M SecrestDepartment of Dermatology, University of Utah, Salt Lake City, UT, USA. aaron.secrest@hsc.utah.edu.ORCID http://orcid.org/0000-0001-9297-0941
University of Utah · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundChronic inflammatory skin diseases like atopic dermatitis (AD) and psoriasis can severely impact patients' quality of life (QOL). However, the effect of these diseases can diminish the QOL of patients' family members as well. The objective of this study was to understand the impact on QOL for family members of patients diagnosed with AD or psoriasis.

methodsWe conducted focus groups and interviews with 23 individuals; 12 had a family member with AD, and 11 had a family member with psoriasis. After investigators independently coded the transcripts, thematic analysis was conducted.

resultsThree major themes emerged: (1) lifestyle consequences-many daily activities for family members, including but not limited to leisure activities, sleep, and cleaning, were affected by AD or psoriasis; (2) emotional consequences-family members felt frustrated, worried, or embarrassed, among other concerns, because of their loved ones' AD or psoriasis; (3) relationships-relationships between family members and their loved ones with AD or psoriasis could become strained, and though family members might try to be sympathetic, doing so could be difficult because of their lack of understanding of how these diseases feel and personally affect their loved ones.

conclusionsThis study highlights the impacts of AD and psoriasis on the whole family. Clinicians should be mindful of the effects on QOL not only for patients but also for family members who live with and care about these patients. Especially when family members assist with treatments, it is important to understand family members' experiences when making treatment decisions.

Indexed as

Dermatitis, AtopicPsoriasisEmotionsFamilyHumansQuality of LifeAtopic dermatitisAtopic eczemaFamilyPsoriasisQualitativeQuality of life

Identifiers

PMID35618988
OpenAlexW4281929064

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.