ArticleJournal of pain and symptom management2022
Factors Influencing Palliative Care Access and Delivery for Great Plains American Indians.
Article in Journal of pain and symptom management, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
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Who cites it
10 citing papers in PubMed, 17 citations in OpenAlex.
- Inequities in access to palliative care and community-based indigenous palliative care programs in Canada: a scoping review.BMC palliative care · 2026Article
- Trauma-informed palliative care: A systematic scoping review of evidence sources describing concepts relevant to an emerging field of practice.Palliative medicine · 2026Article
- "Supportive relationships over support services"-A qualitative study of patient and caregiver perspectives on the implementation of community-based palliative care for people living with advanced noncommunicable diseases.Palliative care and social practice · 2026Article
- Improving Palliative Care Knowledge and Intentions Among Great Plains American Indians: Efficacy Results From a Randomized Clinical Trial Testing a Culture-Centric Palliative Care Message.The American journal of hospice & palliative care · 2025Article
- End-of Life Care Disparities Experienced by American Indian and Alaska Natives Peoples: An Analysis of Data from the 2019 Medicare Master Beneficiary Summary File.Journal of palliative medicine · 2025Article
- Results of a Culturally Tailored Advance Care Planning Intervention for American Indian Peoples: A Quasi-Experimental Waitlist-Controlled Trial.Innovation in aging · 2025Article
- Racism in Pediatric Serious Illness and Palliative Care: A Scoping Review of Qualitative Research.Journal of pain and symptom management · 2025Article
- Naming racism as a root cause of inequities in palliative care research: a scoping review.BMC palliative care · 2024Article
- Increasing Lung Cancer Screening for High-Risk Smokers in a Frontier Population.Journal of cancer education : the official journal of the American Association for Cancer Education · 2024Article
- Great Plains American Indians' Perspectives on Patient and Family Needs Throughout the Cancer Journey.Oncology nursing forum · 2023Article
Corrections and comments
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Authors and funding
11 authors at 5 institutions in 1 country.
Funding
Abstract
contextDespite the known importance of culturally tailored palliative care (PC), American Indian people (AIs) in the Great Plains lack access to such services. While clinicians caring for AIs in the Great Plains have long acknowledged major barriers to serious illness care, there is a paucity of literature describing specific factors influencing PC access and delivery for AI patients living on reservation land.
objectivesThis study aimed to explore factors influencing PC access and delivery on reservation land in the Great Plains to inform the development culturally tailored PC services for AIs.
methodsThree authors recorded and transcribed interviews with 21 specialty and 17 primary clinicians. A data analysis team of seven authors analyzed transcripts using conventional content analysis. The analysis team met over Zoom to engage in code negotiation, classify codes, and develop themes.
resultsQualitative analysis of interview data revealed four themes encompassing factors influencing palliative care delivery and access for Great Plains American Indians: health care system operations (e.g., hospice and home health availability, fragmented services), geography (e.g., weather, travel distances), workforce elements (e.g., care continuity, inadequate staffing, cultural familiarity), and historical trauma and racism.
conclusionOur findings emphasize the importance of addressing the time and cost of travel for seriously ill patients, increasing home health and hospice availability on reservations, and improving trust in the medical system. Strengthening the AI medical workforce, increasing funding for the Indian Health Service, and transitioning the governance of reservation health care to Tribal entities may improve the trustworthiness of the medical system.
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Registered trials
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