ArticleJournal of diabetes and its complications2022
Concordance and discordance between youth and their parents' reports of diabetes distress: The importance of youth perceptions.
Article in Journal of diabetes and its complications, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
What it found
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Who cites it
3 citing papers in PubMed, 2 citations in OpenAlex.
- Executive Functioning, Diabetes Distress, and Diabetes Management Among Adolescents With Type 1 Diabetes: Youth and Parent Perspectives.Pediatric diabetes · 2025Trial
- The diabetes distress experience from the perspective of adolescents and their parents.Frontiers in clinical diabetes and healthcare · 2026Article
- Parents of Children With Type 1 Diabetes Experienced More Parent-Specific Distress Than Parents of Adolescents in China.Pediatric diabetes · 2025Article
Corrections and comments
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Authors and funding
3 authors at 1 institution in 1 country.
Funding
Abstract
aimsThe purpose of this study was to examine concordance and discordance between youth and parent reports of diabetes distress (DD) and their impact on glycemic control, diabetes-specific family conflict, and diabetes task responsibility.
methodsYouth with type 1 diabetes ages 8-17 years (N = 120, 49% female) and their parents (84% mothers) completed surveys assessing DD, diabetes-specific family conflict, and family responsibility for diabetes tasks. Participants who scored below validated cut-points for DD were categorized as having low DD and above cut-points as elevated DD. Then youth/parent dyads were categorized as concordant when youth and parents both reported low DD or both reported elevated DD and discordant when one reported low DD and one reported elevated DD.
resultsAbout a quarter (26% of youth, 23% of parents) reported elevated DD; 10% of youth/parent dyads were concordant for elevated DD. However, many dyads (28%) reported discordantly (12.5% Youth Low/Parent Elevated, 16% Youth Elevated/Parent Low). A1c (p = .04) and youth-reported diabetes-specific family conflict (p = .04) were significantly higher in the Youth Elevated/Parent Low group than in the Youth Low/Parent Elevated group.
conclusionsDD can be experienced differently among youth and their parents. When this experience is discordant, youth perceptions may be important to consider.
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Registered trials
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