ArticleActa paediatrica (Oslo, Norway : 1992)2022
A scoping review of cognition in spina bifida and its consequences for activity and participation throughout life.
Article in Acta paediatrica (Oslo, Norway : 1992), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
21 citing papers in PubMed, 34 citations in OpenAlex.
- Profile of individuals with full-scale intelligence quotient (FSIQ) scores in the National Spina Bifida Patient Registry (NSBPR).Journal of pediatric rehabilitation medicine · 2026Article
- Navigating the challenges of moving from research to clinical care: The example of the Teen Online Problem Solving program.Journal of pediatric rehabilitation medicine · 2026Article
- Association between fetal brain diffusion-weighted imaging and postnatal neurodevelopmental outcome after prenatal myelomeningocele repair.Ultrasound in obstetrics & gynecology : the official journal of the International Society of Ultrasound in Obstetrics and Gynecology · 2026Article
- The burden of neural tube defects in Southern Ethiopia: trends, hotspots, and public health implications.PeerJ · 2026Article
- Understanding Disease Aetiology and Related Needs Knowledge of Parents of Children With Spina Bifida.Child: care, health and development · 2026Article
- Long-term cognitive outcomes of Chiari II malformation and corpus callosum abnormalities in myelomeningocele.Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery · 2025Review
- Neuropsychological predictors of growth in condition-related self-management skill mastery in youth with spina bifida.Journal of pediatric psychology · 2025Article
- Family factors as moderators of the association between specific cognitive domains and psychosocial, academic, and adaptive functioning outcomes in youth with spina bifida.Journal of pediatric psychology · 2025Article
- The daily phone diary in adolescents and young adults with spina bifida: utility and psychometric evidence.Journal of pediatric psychology · 2025Article
- The importance of friendship: influence of peer relationships on physical and mental health in youth with spina bifida.Journal of pediatric psychology · 2025Article
- Memory in Spina Bifida, from Childhood to Adulthood: A Systematic Review.Journal of clinical medicine · 2024Review
- Growth of condition-related knowledge among youth with spina bifida: associations with neurocognitive functioning and self-management skills.Journal of pediatric psychology · 2024Article
- Linguistic, Content and Face Validity of the Swedish Version of a Quality-of-Life Assessment for Children, Teenagers and Adults with Spina Bifida.International journal of environmental research and public health · 2024Article
- Multidisciplinary management of people with spina bifida across the lifespan.Pediatric nephrology (Berlin, Germany) · 2024Review
- Thalamic connectivity topography in newborns with spina bifida: association with neurological functional level but not developmental outcome at 2 years.Cerebral cortex (New York, N.Y. : 1991) · 2024Article
- "I'm a bathroom expert": a qualitative study exploring how students with physical disabilities manage toileting during college.Frontiers in pediatrics · 2024Article
- Impact of Spina Bifida on Sleep Quality: Current Insights.Nature and science of sleep · 2023Review
- Feasibility of temperature monitoring smart socks in adolescents and young adults with spina bifida.Journal of pediatric rehabilitation medicine · 2023Article
- A scoping review of cognition in spina bifida and its consequences for activity and participation throughout life.Acta paediatrica (Oslo, Norway : 1992) · 2022Article
- A Workflow to Integrate Psychoeducational Data into the Electronic Medical Record and National Spina Bifida Registry.Pediatric quality & safetyArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 4 institutions in 1 country.
Funding
Abstract
aimThe aim of this scoping review was to summarise findings concerning cognitive characteristics in people with spina bifida and explain how cognitive factors influence activities and participation in different areas and stages of life.
methodsPubMed, Psych INFO, ERIC, Scopus, CINAHL and the Cochrane Library were searched for English language papers published in 2000-2018. A total of 92 papers were selected and quality was assessed according to the McMaster criteria. The results were presented related to body functions, activity and participation from the International Classification of Function and Health, ICF.
resultsPeople with spina bifida tended to have a lower IQ than those without. The majority also had cognitive difficulties manifested in problems with language, perception, memory, executive and attentional functions. Those difficulties affected activity and participation in all life domains in ICF. This may affect medical adherence and responsibility and by extension the prevention of secondary complications.
conclusionIt is important for caregivers, professionals and especially individuals with spina bifida themselves to understand and handle both physical and cognitive consequences in all life circumstances. Having insight into one's own assets and difficulties paves the way to managing life challenges, which could enhance health, self-management and participation in society.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.