ArticleBMC health services research2022
Patients' cancer care perceptions conceptualized through the Cancer Experience Measurement Framework.
Article in BMC health services research, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
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Who cites it
13 citing papers in PubMed.
- The Effect of Oncology Nurse Navigation on Mental Health in Patients with Cancer in Taiwan: A Randomized Controlled Clinical Trial.Current oncology (Toronto, Ont.) · 2024Trial
- Timeliness, Coordination, Clarity, and Kindness: Patients' Interpretations of Provider Actions as Indicators of Quality Cancer Care.The Permanente journal · 2026Article
- Mapping methods and tools for measuring patient experience in oncology settings: a scoping review.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Exploring the Impact of Gender and Income on Concerns Reported by Cancer Survivors Aged ≥85 Years in Canada: A Secondary Analysis of the Canadian Transitions Survey.Current oncology (Toronto, Ont.) · 2026Article
- Evaluating Patient Experience With Genomic Medicine: A Content Analysis of National Cancer Institute-Designated Cancer Centers' Websites.JMIR cancer · 2025Article
- Perceived health related quality of life among cancer patients based on insights from Kamuzu central hospital patients, caregivers and staff.Scientific reports · 2025Article
- Analysis of the Results of Monitoring the Quality of Services in Oncological Treatment, Conducted as Part of the Pilot Project of the National Cancer Network for Lung Cancer in 2019-2023, in Poland.Patient preference and adherence · 2025Article
- Socioeconomic disadvantage and its impact on patient satisfaction at a multi-site radiation oncology center.Technical innovations & patient support in radiation oncology · 2024Article
- Caring for older adults with cancer in Canada: Views from healthcare providers and cancer care allies in the community.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2024Article
- Comparing Medicare plan selection among beneficiaries with and without a history of cancer.Health affairs scholar · 2024Article
- Access to advanced healthcare services and its associated factors among patients with cervical cancer in Addis Ababa, Ethiopia.Frontiers in oncology · 2024Article
- Quantifying the Impact of Family Doctors on the Care Experiences of Patients with Cancer: Exploring Evidence from the 2021 Ambulatory Oncology Patient Satisfaction Survey in Alberta, Canada.Current oncology (Toronto, Ont.) · 2023Article
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Abstract
backgroundResearch on patients' perceptions of cancer care often documents sub-optimal experiences. Cancer care quality issues include restricted service access, lack of care coordination, gaps in follow-up and "generic" rather than person-centered care. Recent reports underscore that proactively and periodically seeking user feedback is crucial for timely care quality improvement. The present study aimed to analyze and thematically organize a large amount of feedback from patients who had been treated for cancer within the last 6 months.
methodsRandomly selected participants (N = 3,278) from 3 University-affiliated cancer centres in Montreal, Quebec, Canada completed the Ambulatory Oncology Patient Satisfaction Survey (AOPSS) and an open-ended question on their perceptions of the care they received. 692 participants responded to the latter. Guided by the Cancer Experience Measurement Framework (CEMF), their feedback was analyzed using a qualitative thematic approach.
resultsCancer care perceptions included sub-themes of care access and coordination, continuity/transition, and perceived appropriateness/personalisation of care. The most salient theme was captured by care access and coordination with 284 comments (44%) directly addressing these issues. The ways in which health care services were structured including setting, schedule, and location were often raised as cause for concerns. Issues surrounding cancer information/education, emotional support, and physical comfort were frequently reported as unmet needs. In addition, limited access to cancer services led patients to seek alternatives such as going to emergency departments and/or private care.
conclusionsThese findings are timely as they show that most patients are well aware of quality issues in cancer care and are willing to report candidly on these. Patient feedback also underscore the importance for cancer care institutions to periodically gather patient-reported data so that systems can re-calibrate their service offerings according to these data. Ultimately, patient reports will translate into enhanced quality, personalization, and safer cancer care provision.
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