ArticleJCO oncology practice2022
Sexual Orientation and Gender Identity Data Collection in Oncology Practice: Findings of an ASCO Survey.
Article in JCO oncology practice, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 50 papers.
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Who cites it
50 citing papers in PubMed.
- Mapping Multilevel Barriers and Facilitators to Inclusive Cancer Care for Sexual and Gender Minority Populations: A Scoping Review.Cancer medicine · 2026Article
- "A sweating moment": impact of disclosure in cancer care on LGBTQI patient satisfaction.Journal of cancer survivorship : research and practice · 2026Article
- Person-level health factors partially mediate the association between lesbian, gay, or bisexual (LGB) identity, allostatic load, and cancer mortality in NHANES.Cancer causes & control : CCC · 2026Article
- Difference-making pathways to implementing systematic, partial, or no data collection of sexual orientation and gender identity in oncology settings: a coincidence analysis.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Barriers to Care Among LGBT Cancer Survivors: An Analysis of the All of Us Research Program.Cancers · 2026Article
- "Pink is my least favorite color": experiences of sexual minority women and partners navigating breast cancer.Journal of psychosocial oncology · 2026Article
- When algorithms infer gender: revisiting computational phenotyping with electronic health records data.Biology of sex differences · 2025Review
- Sexual Orientation and Gender Identity Data in Oncology: Thematic Analysis From a National Qualitative Interview Study.Cancer medicine · 2025Article
- Sexual Orientation and Gender Identity Measures for Cancer Research: Feedback from Older Americans.LGBT health · 2025Article
- Implementing MyChart-Driven Sexual Orientation and Gender Identity Data Collection at Three Comprehensive Cancer Center Clinics.Journal of the National Comprehensive Cancer Network : JNCCN · 2025Article
- A Scoping Review Mapping Trans* and Gender Diverse People's Representation in Cancer Research.Cancer medicine · 2025Article
- Collecting sexual orientation and gender identity data in cancer centers.Journal of the National Cancer Institute. Monographs · 2025Article
- Implementation factors for sexual orientation and gender identity patient data collection in a comprehensive cancer center: findings from a center-wide readiness assessment survey for the ASK Sexual Orientation and Gender Identity study.Journal of the National Cancer Institute. Monographs · 2025Article
- Affirming and effective sexual orientation and gender identity data collection: barriers, preferences, and recommendations from the community, clinicians, and staff.Journal of the National Cancer Institute. Monographs · 2025Article
- Implementation of sexual orientation and gender identity data collection in a cancer care setting.Journal of the National Cancer Institute. Monographs · 2025Article
- Targeted intervention and monitoring of sex assigned at birth, sexual orientation, and gender identity data scale-up: the intersection of research, policy, and patient care.Journal of the National Cancer Institute. Monographs · 2025Article
- Perspectives on sexual orientation and gender identity data collection from healthcare system staff and leadership: case study in an academic hospital setting.Journal of the National Cancer Institute. Monographs · 2025Article
- Patient Sexual Orientation and Gender Identity Information Practices in Oncology.JAMA network open · 2025Article
- Patient care practices for LGBTQ+ individuals in clinical genetics: A scoping review.Journal of genetic counseling · 2025Article
- A Multistakeholder Qualitative Study to Inform Sexual Orientation and Gender Identity Data Collection in the Cancer Care Setting.LGBT health · 2025Article
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Authors and funding
11 authors.
Funding
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Abstract
purposeLack of collection of sexual orientation and gender identity (SOGI) data in oncology practices limits assessment of sexual and gender minority (SGM) cancer patients' experiences and restricts opportunities to improve health outcomes of SGM patients. Despite national calls for routine SOGI data collection, individual-level and institutional barriers hinder progress. This study aimed to identify these barriers in oncology.
methodsAn online survey of ASCO members and others assessed SOGI data collection in oncology practices, institutional characteristics related to SOGI data collection, respondents' attitudes about SOGI data and SGM patients, and respondent demographics. Logistic regression calculated adjusted odds ratios (ORs) and 95% CIs for factors associated with sexual orientation (SO) and gender identity (GI) data collection.
resultsLess than half of 257 respondents reported institutional SO and GI data collection (40% and 46%, respectively), whereas over a third reported no institutional data collection (34% and 32%, respectively) and the remainder were unsure (21% and 17%, respectively). Most respondents felt that knowing both SO and GI was important for quality care (77% and 85%, respectively). Collection of SO and GI was significantly associated in separate models with leadership support (ORs = 8.01 and 6.02, respectively), having resources for SOGI data collection (ORs = 10.6 and 18.7, respectively), and respondents' belief that knowing patient SO and GI is important (ORs = 4.28 and 2.76, respectively). Themes from qualitative comments mirrored the key factors identified in our quantitative analysis.
conclusionThree self-reinforcing factors emerged as critical drivers for collecting SOGI data: leadership support, dedicated resources, and individual respondents' attitudes. Policy mandates, implementation science, and clinical reimbursement are strategies to advance meaningful data collection and use in clinical practice.
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