Evidence map›Paper›PMID 35603668›Full record

ArticlePalliative medicine2022

Medical communication and decision-making about assisted hydration in the last days of life: A qualitative study of doctors experienced with end of life care.

Arjun Kingdon, Anna Spathis, Bárbara Antunes, Stephen Barclay

Open access · greenAbstract read
In one paragraph

Article in Palliative medicine, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
2.0field-weighted citation impact, top 14% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed, 10 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 1 institution in 1 country.

Arjun KingdonDepartment of Public Health and Primary Care, University of Cambridge, Cambridge, UK.ORCID 0000-0002-2914-082X
Anna SpathisDepartment of Public Health and Primary Care, University of Cambridge, Cambridge, UK.
Bárbara AntunesDepartment of Public Health and Primary Care, University of Cambridge, Cambridge, UK.ORCID 0000-0003-1655-7391
Stephen BarclayDepartment of Public Health and Primary Care, University of Cambridge, Cambridge, UK.
University of Cambridge · GB

Funding

Department of Health
6 · The paper itself

Abstract

backgroundThe impact of assisted hydration on symptoms and survival at the end of life is unclear. Little is known about optimal strategies for communicating and decision-making about this ethically complex topic. Hydration near end of life is known to be an important topic for family members, but conversations about assisted hydration occur infrequently despite guidance suggesting these should occur with all dying people.

aimTo explore the views and experiences of doctors experienced in end-of-life care regarding communicating with patients and families and making decisions about assisted hydration at the end of life.

designQualitative study involving framework analysis of data from semi-structured interviews. SETTING/

participantsSixteen UK-based Geriatrics and Palliative Medicine doctors were recruited from hospitals, hospices and community services from October 2019 to October 2020.

resultsParticipants reported clinical, practical and ethical challenges associated with this topic. The hospital setting provides barriers to high-quality communication with dying patients and their families about assisted hydration, which may contribute to the low incidence of documented assisted hydration-related conversations. Workplace culture in some hospices may make truly individualised decision-making about this topic more difficult. Lack of inclusion of patients in decision-making about assisted hydration appears to be common practice.

conclusionsProactive, routine discussion with dying people about hydration-related issues is indicated in all cases. There is room for debate regarding the limits of shared decision-making and the benefits of routine discussion of assisted hydration with all dying people. Clinicians have to navigate multiple barriers as they strive to provide individualised care.

Indexed as

Hospice CareTerminal CareCommunicationDeathDecision MakingHumansQualitative ResearchcommunicationdeathDecision makingfluid therapysharedterminal care

Identifiers

PMID35603668
PMCPMC9248002
OpenAlexW4281252540

What OpenQuestion holds

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LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.