ReviewJournal of policy and practice in intellectual disabilities2022
The mental health and well-being of adults with intellectual disability during the COVID-19 pandemic: A narrative review.
Review in Journal of policy and practice in intellectual disabilities, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
25 citing papers in PubMed, 1 synthesis or guideline pooled it, 63 citations in OpenAlex.
- Instruments in Spanish to Assess the Mental Health of Adults With Intellectual Disabilities. A Systematic Review.Journal of applied research in intellectual disabilities : JARID · 2025Pooled it
- "Everything has changed since COVID": Ongoing challenges faced by Canadian adults with intellectual disabilities during waves 2 and 3 of the COVID-19 pandemic.Journal of intellectual disabilities : JOID · 2026Article
- The impact of a virtual wellness course for adults with intellectual and developmental disabilities in the third year of COVID-19.Journal of intellectual disabilities : JOID · 2026Article
- The COVID-19 pandemic could worsen the psychological well-being of people with disabilities in Cambodia.Scientific reports · 2026Article
- Experiences of typically developing siblings of children with profound intellectual and multiple disabilities during the COVID-19 pandemic in Poland.International journal of developmental disabilities · 2026Article
- Improving the health of people with intellectual disability: past progress and future directions.Frontiers in psychiatry · 2026Article
- How Did the COVID-19 Restrictions Change the Digital Contact of People With Intellectual Disabilities? A Longitudinal Multi-Method Study in Sheltered Home Care Facilities.Journal of applied research in intellectual disabilities : JARID · 2025Article
- Three Years on From "Stay at Home": Perspectives of People With Intellectual Disabilities About the Ongoing Impact of the COVID-19 Pandemic.Journal of applied research in intellectual disabilities : JARID · 2025Article
- Long COVID in people with mental health disorders: a scoping review.BMC psychiatry · 2025Article
- Understanding Barriers to Mental Health Supports During the Pandemic for Workers in Intellectual Disability Services.Journal of applied research in intellectual disabilities : JARID · 2025Article
- What Would Have Helped People With Profound Intellectual and Multiple Disabilities in the UK During COVID-19?Journal of policy and practice in intellectual disabilities · 2024Article
- Acceptance and Use of eHealth in Support and Psychological Therapy for People With Intellectual Disabilities: Two Cross-Sectional Studies of Health Care Professionals.JMIR formative research · 2024Article
- Psychological distress and mental health diagnoses in adults by disability and functional difficulty status: Findings from the 2021 national health interview survey.Disability and health journal · 2024Article
- Bridging the gap: national virtual education programme for professionals caring for adults with intellectual and developmental disabilities at the time of COVID-19.BJPsych open · 2024Article
- The effects of lockdown of work and activities for adults with multiple, complex needs including sensory impairments during the pandemic in 2020.Journal of intellectual disabilities : JOID · 2024Article
- An Accessible Web-Based Survey to Monitor the Mental Health of People With Mild Intellectual Disability or Low Literacy Skills During the COVID-19 Pandemic: Comparative Data Analysis.JMIR public health and surveillance · 2024Article
- The Impact of Emergency Pandemic HCBS Funding on the Continuity and Security of People with Intellectual and Developmental Disabilities.Journal of autism and developmental disorders · 2024Article
- How COVID-19 impacted people with disabilities: A qualitative study in Delaware.Public health in practice (Oxford, England) · 2023Article
- Mental Health of People with Intellectual Disabilities Living in Residential Care before, during, and after Lockdown.Behavioral sciences (Basel, Switzerland) · 2023Article
- Long COVID Syndrome Presenting as Neuropsychiatric Exacerbations in Autism Spectrum Disorder: Insights for Treatment.Journal of personalized medicine · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors at 4 institutions in 4 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Prior to the start of the pandemic, adults with intellectual disability (ID) were more likely to experience mental health difficulties and face barriers obtaining mental health care. COVID-related public health restrictions, combined with heightened challenges to obtain timely mental health care, have served to worsen this situation internationally, with a combination of new onset conditions and worsening mental health for those already struggling. In this narrative review, we summarize literature on the mental health of adults with ID during the COVID-19 pandemic to describe what is known based on clinician perceptions, existing administrative health data, family and staff perceptions, and self-report. In addition to noting similarities and differences in findings based on the source of information, we also explored how experiences differed depending on where and when the research was conducted. Based primarily on research conducted during the first six months of the pandemic, there is a consistent finding across sources of increased anxiety, stress, and isolation. This review also explored the delivery of virtual mental health care and the impact of pandemic-based mental health interventions. There have been very few research studies evaluating clinical care during this time but clinicians have managed to provide supports virtually, which has been evaluated positively by some individuals. This narrative review concludes by identifying gaps in the literature and suggests key directions for future mental health research, policy, and practice efforts. Any mental health efforts now and during pandemic recovery need to have an understanding of how the mental health needs and services for adults with ID have evolved over the course of the pandemic. Further research is needed on the impact of both clinical interventions and other nonclinical efforts on the mental health of people with ID.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.