Evidence map›Paper›PMID 35601013›Full record

ArticleJournal of policy and practice in intellectual disabilities2022

Key learnings from COVID-19 to sustain quality of life for families of individuals with IDD.

Rachael Wanjagua, Stevie-Jae Hepburn, Rhonda Faragher, Shaji Thomas John, K Gayathri, Margaret Gitonga, Cecylia Francis Meshy, Lucena Miranda, Devis Sindano

Abstract read
In one paragraph

Article in Journal of policy and practice in intellectual disabilities, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.

0numbers the graph read from it
0cells of the map it votes in
5citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

5 citing papers in PubMed.

  1. Article
  2. Article
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  5. Key learnings from COVID-19 to sustain quality of life for families of individuals with IDD.Journal of policy and practice in intellectual disabilities · 2022
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Rachael WanjaguaDepartment of Disability and Human Development University of Illinois at Chicago Chicago Illinois USA.ORCID https://orcid.org/0000-0001-7919-161X
Stevie-Jae HepburnSchool of Education The University of Queensland Brisbane Queensland Australia.ORCID https://orcid.org/0000-0001-5874-0907
Rhonda FaragherSchool of Education The University of Queensland Brisbane Queensland Australia.ORCID https://orcid.org/0000-0003-0245-9934
Shaji Thomas JohnDown Syndrome Clinic Baby Memorial Hospital Calicut India.ORCID https://orcid.org/0000-0003-4139-6497
K GayathriDown Syndrome Clinic Baby Memorial Hospital Calicut India.
Margaret GitongaDisability Advocate and parent Nairobi Kenya.
Cecylia Francis MeshyParenting for Autism Network Dar es Salaam Tanzania.
Lucena MirandaDepartment of Education Batangas City Philippines.ORCID https://orcid.org/0000-0001-5002-2898
Devis SindanoL'Arche Association of Calgary Calgary Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

COVID-19 has very publicly had profound impacts on the health system of every country in the world. Over 4.5 million people have lost their lives. School closures worldwide where up to 1.6 billion of the world's children have been out of school, are also prominent in world news. Behind these public impacts are the families. In this paper, we focus on the experiences of families with people with intellectual and developmental disabilities (IDD) through analysis of two data sets: the emerging research literature and contributions from our author team who have lived experience of intellectual and developmental disability in the context of COVID-19. From these two data sets, we discern five themes of the impact of the pandemic: on health, on education, on services and supports, on families and finally on relationships beyond the family. We conclude with lessons from those living with intellectual and developmental disabilities, the carers and the individuals themselves to draw implications for supporting families in the context of disability during future pandemics.

Indexed as

COVID‐19educationfamiliesintellectual disabilityquality of life

Identifiers

PMID35601013
PMCPMC9115200

What OpenQuestion holds

Textmetadata
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.