Evidence map›Paper›PMID 35601010›Full record

ReviewJournal of policy and practice in intellectual disabilities2022

Ethics framework and recommendations to support capabilities of people with intellectual and developmental disabilities during pandemics.

William F Sullivan, Petra Björne, John Heng, Ruth Northway

Open access · greenAbstract readReview
In one paragraph

Review in Journal of policy and practice in intellectual disabilities, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
0.9field-weighted citation impact, top 23% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed, 4 citations in OpenAlex.

  1. Article
  2. Review
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors at 4 institutions in 4 countries.

William F SullivanDepartment of Family and Community Medicine and Academic Family Health Team St. Michael's Hospital Toronto Ontario Canada.ORCID https://orcid.org/0000-0002-0520-0541
Petra BjörneDepartment for Disability Support Malmö Sweden.ORCID https://orcid.org/0000-0001-8085-2008
John HengDepartments of Philosophy, Thanatology, Disability Studies King's University College at Western University London Ontario Canada.ORCID https://orcid.org/0000-0002-6080-580X
Ruth NorthwayFaculty of Life Sciences and Education University of South Wales Wales UK.
Malmö University · SESt. Michael's Hospital · CAUniversity of South Wales · GBWestern University · CA

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

A growing body of knowledge highlights the negative impact of the COVID-19 pandemic on the health and well-being of many people with intellectual and developmental disabilities (IDDs) and their caregivers. The underlying reasons are not only due to biomedical factors but also ethical issues. They stem from longstanding and pervasive structural injustices and negative social attitudes that continue to devalue people with IDD and that underlie certain clinical decisions and frameworks for public-health policies during this pandemic. Unless these fundamental ethical shortcomings are addressed, pandemic responses will continue to undermine the human rights and well-being of people with IDD. This paper proposes an ethics framing for policy and practices regarding clinical care and public health based on Martha Nussbaum's approach to Capability Theory. Such a framework can reorient healthcare professionals and healthcare systems to support the capabilities of people with IDD to protect, recover, and promote health and well-being. It could be applied during this pandemic and in planning for future pandemics. The paper presents some practical recommendations that follow from applying this framework.

Indexed as

COVID‐19ethicshealth equityhealth policyintellectual disability

Identifiers

PMID35601010
PMCPMC9115164
OpenAlexW4214680603

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.