ArticleHealth & social care in the community2022
The experience of structural burden for culturally and linguistically diverse family carers of people living with dementia in Australia.
Article in Health & social care in the community, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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Who cites it
15 citing papers in PubMed.
- The modifying effect of work-care role conflict on the effectiveness of carer support: results from the Australian Draw Care randomized clinical trial.The journals of gerontology. Series A, Biological sciences and medical sciences · 2026Trial
- A feasibility study on embedding the usual Chinese iSupport and tailored Chinese iSupport programs in aged care services.Australasian journal on ageing · 2025Trial
- Stakeholders' Perspectives on Implementing the iSupport for Dementia Program to Address Inequalities in Dementia Care: A Qualitative Study.Scandinavian journal of caring sciences · 2026Article
- A culturally tailored iSupport model for dementia carers: Study protocol for a hybrid type I randomised controlled trial.International journal of nursing studies advances · 2026Article
- "We have a behaviour support plan, let's have a mental health support plan": Perspectives of staff, residents and family carers on understanding, responding to and promoting the mental health of residents within long-term care.Dementia (London, England) · 2026Article
- Draw-Care, a Co-Designed Multilingual Digital Intervention for Family Carers of People Living With Dementia From Ethnically Diverse Communities: User-Testing Study.JMIR formative research · 2026Article
- Power, class, and gender in dementia care: Stories of carer precariousness from culturally and linguistically diverse female family carers in Australia.Dementia (London, England) · 2026Article
- Developing a dementia care and support needs framework for Culturally and Linguistically Diverse populations: A whole-of-community co-design approach.Australasian journal on ageing · 2025Article
- Evaluating an evidence-based iSupport for Dementia programme in routine care services: study protocol for a hybrid type II trial.BMJ open · 2025Article
- Physical and Mental Health of Informal Carers from Culturally and Linguistically Diverse (CALD) and Non-CALD Groups in Australia.Healthcare (Basel, Switzerland) · 2024Article
- Barriers and enablers of women carers from culturally and linguistically diverse communities participating in physical activities.Frontiers in sports and active living · 2024Article
- The experience of structural burden for culturally and linguistically diverse family carers of people living with dementia in Australia.Health & social care in the community · 2022Article
- The impact of training on communication quality during interpreter-mediated cognitive assessments: Study protocol for a randomized controlled trial.Alzheimer's & dementia (New York, N. Y.) · 2022Article
- Validation of the Arabic Dementia Diagnosis Attitude Scale (A-DDAS).Alzheimer's & dementia (Amsterdam, Netherlands)Article
- Article
Corrections and comments
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Authors and funding
10 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Evidence suggests that family carers of culturally and linguistically diverse (CALD) people living with dementia experience higher stress and unmet need than the general Australian population. These disparities are often framed as the result of CALD communities failing to seek formal support. Challenging this, we draw on the concept of 'structural burden' to explore how the complexity of health and aged systems contribute to the burden that CALD carers experience. We conducted semi-structured interviews with 104 family carers for CALD people with dementia in Australia, followed by thematic analysis of transcripts. Additional to structural burdens encountered by the general older population, CALD carers faced challenges understanding Australia's Anglo-centric aged care system, locating culturally appropriate care and were required to translate the languages and operations of health and aged care systems into terms their family members understood. This burden was mitigated by the presence of ethno-specific organisations and other navigation support. Australia's aged care system has moved towards centralised governance and consumer-directed care provision. This system involves a confusing array of different programmes and levels, bureaucratic applications and long waiting times. Carers' encounters with these systems demonstrates how some CALD people are being left behind by the current aged care system. While ethno-specific services can reduce this burden, not all CALD groups are represented. Consequently, improving access to dementia care among CALD populations requires entry point and navigation support that is culturally appropriate and linguistically accessible.
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