ArticleEuropean journal of pain (London, England)2022
What do I need to know? Essential educational concepts for complex regional pain syndrome.
Article in European journal of pain (London, England), 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.
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Who cites it
12 citing papers in PubMed, 21 citations in OpenAlex.
- Rehabilitation outcomes in patients with complex regional pain syndrome of the ankle-foot complex: a single-center observational study.BMC musculoskeletal disorders · 2026Observational
- Article
- Identifying recommendations to improve therapy-led management of complex regional pain syndrome in England.British journal of pain · 2025Article
- Cognitive Function in Patients With Complex Regional Pain Syndrome: No Clear Impairment Found in a Select Patient Sample.European journal of pain (London, England) · 2025Article
- Multidisciplinary approach and the Self-Training Educative Pain Sensation (STEPS) model for managing orofacial complex regional pain syndrome.BMJ case reports · 2025Article
- [Cognitive behavioral therapy for complex regional pain syndrome].Schmerz (Berlin, Germany) · 2025Article
- The acceptability, feasibility, and usability of a virtual reality pain education and rehabilitation program for Veterans: a mixed-methods study.Frontiers in pain research (Lausanne, Switzerland) · 2025Article
- Pain science education concepts for pelvic pain: an e-Delphi of expert clinicians.Frontiers in pain research (Lausanne, Switzerland) · 2025Article
- Association Between Chronic Pain and Jumping-to-Conclusions Behaviour.Pain research & management · 2025Article
- Participatory design of an infographic to help support the care of people living with complex regional pain syndrome.British journal of pain · 2023Article
- Experiences of diagnosis and treatment for upper limb Complex Regional Pain Syndrome: a qualitative analysis.Pain medicine (Malden, Mass.) · 2023Article
- What do I need to know? Essential educational concepts for complex regional pain syndrome.European journal of pain (London, England) · 2022Article
Corrections and comments
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Authors and funding
6 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundComplex Regional Pain Syndrome (CRPS) is a rare but disabling pain condition. Accurate and timely education about CRPS is key to promote optimal clinical outcomes, but it is unclear what the content of that education should be. We aimed to determine the content that both people with CRPS and expert health care professionals (HCPs) reported as important.
methodsAn international three-round e-Delphi was conducted, recruiting adults diagnosed with CRPS and HCPs. In Round 1, participants were asked to list the most important information people with CRPS should know regarding the condition. Data were organized into concepts and allocated to themes. In Rounds 2 and 3, participants rated each concept on a 9-point Likert Scale, categorized as 'not important' (0-3), 'important' (4-6) and 'very important' (7-9). A concept attained consensus when ≥75% agreement was reached within a category.
resultsSixty-two participants (HCPs: n = 7; CRPS: n = 55) proposed 193 concepts in Round 1, resulting in 22 themes. Fifteen additional concepts were identified in Round 2, resulting in a total of 208 concepts. From that list, 48 concepts that emphasized understanding and evidence-based management of the disorder, the importance of self-management strategies, pacing and movement, reached joint consensus as 'very important'. One concept: 'Advise that movement does not help' reached joint consensus as 'not important'.
conclusionForty-eight concepts were jointly considered 'very important' for future CRPS-related educational content. Future research to better understand group differences and to canvas a broader HCP group is warranted. SIGNIFICANCE: This e-Delphi study identified the 48 core concepts that those with the lived experience of CRPS, and advanced practitioner health care professionals jointly rated as 'very important' to include in fundamental and accessible educational material.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.