Evidence map›Paper›PMID 35592881›Full record

ReviewJournal of health services research & policy2022

The experience of informal caregivers in providing patient care in hospitals in low- and middle-income countries: A qualitative meta-synthesis.

Unarose Hogan, Amanda Bingley, Hazel Morbey, Catherine Walshe

Abstract readReview
PubMed Full text at PMC Publisher
In one paragraph

Review in Journal of health services research & policy, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 20 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
20citing papers in PubMed, 1 pooled it
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1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

20 citing papers in PubMed, 1 synthesis or guideline pooled it.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Unarose HoganDivision of Health Research, Faculty of Health and Medicine, 151268Lancaster University, Bailrigg, UK.ORCID 0000-0002-2139-3830
Amanda BingleyDivision of Health Research, Faculty of Health and Medicine, 151268Lancaster University, Bailrigg, UK.
Hazel MorbeyDivision of Health Research, Faculty of Health and Medicine, 151268Lancaster University, Bailrigg, UK.
Catherine WalsheDivision of Health Research, Faculty of Health and Medicine, 151268Lancaster University, Bailrigg, UK.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveIn low- and middle-income countries, informal caregivers frequently stay in hospitals and perform patient care tasks typically performed by nurses in other contexts. This article reviews qualitative research on these informal caregivers, to gain insight and understanding of their experiences.

methodsWe undertook a qualitative meta-synthesis. Relevant literature was identified through searches of electronic databases in 2021. Thematic analysis was conducted to facilitate the identification of conceptual relationships to formulate synthesised findings.

resultsTwenty-four studies met the inclusion criteria - 13 from Sub-Saharan Africa, five from Bangladesh, two from India, two from Iran, one from Brazil and one from Peru. Three themes were generated from the meta-synthesis: (1) The unwelcome but tolerated guest, (2) Enduring personal sacrifice and (3) Fulfilling familial obligations. These themes emphasised the significant burden associated with the hospital caregiving experience and highlighted the implicit reliance on informal caregivers in low- and middle-income countries.

conclusionsInformal caregivers perform an essential caregiving role, yet occupy a peripheral and voluntary space in hospitals. There is a clear need to support informal caregivers so that they can safely perform their tasks.

Indexed as

CaregiversDeveloping CountriesHospitalsHumansPatient CareQualitative Researchinformal caregiversLow- and middle-income countriessystematic review

Identifiers

PMID35592881
PMCPMC9548935

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.