Evidence map›Paper›PMID 35578275›Full record

ArticleResearch involvement and engagement2022

'Getting involved in research': a co-created, co-delivered and co-analysed course for those with lived experience of health and social care services.

Carolyn Blair, Paul Best, Patricia Burns, Anne Campbell, Gavin Davidson, Joe Duffy, Anne Johnston, Berni Kelly, Campbell Killick, Denise Mac Dermott and 12 more

Open access · goldAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Research involvement and engagement, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 8 papers.

0numbers the graph read from it
0cells of the map it votes in
8citing papers in PubMed
3.9field-weighted citation impact, top 7% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

8 citing papers in PubMed, 17 citations in OpenAlex.

  1. Trial
  2. Improving the Accessibility of Consumer Orientation: Co-Designing Infection Control Training for Consumers Partnering With Health Services.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  3. Article
  4. Article
  5. Article
  6. Article
  7. Article
  8. Research Buddy partnership in a MD-PhD program: lessons learned.Research involvement and engagement · 2023
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

22 authors at 3 institutions in 2 countries.

Carolyn BlairSchool of Nursing and Midwifery, Queen's University Belfast, Medical Biology Centre, 97 Lisburn Road, Belfast, BT9 7BL, Northern Ireland. c.blair@qub.ac.uk.ORCID http://orcid.org/0000-0001-5454-5813
Paul BestSchool of Social Sciences, Education and Social Work, Queen's University Belfast, 6 College Park, Belfast, Northern Ireland.
Patricia BurnsSchool of Applied Social & Policy Sciences, Shore Road, Ulster University, Northern Ireland.
Anne CampbellSchool of Social Sciences, Education and Social Work, Queen's University Belfast, 6 College Park, Belfast, Northern Ireland.
Gavin DavidsonSchool of Social Sciences, Education and Social Work, Queen's University Belfast, 6 College Park, Belfast, Northern Ireland.
Joe DuffySchool of Social Sciences, Education and Social Work, Queen's University Belfast, 6 College Park, Belfast, Northern Ireland.
Anne JohnstonPraxis Care, 25-31 Lisburn Road, Belfast, Northern Ireland.
Berni KellySchool of Social Sciences, Education and Social Work, Queen's University Belfast, 6 College Park, Belfast, Northern Ireland.
Campbell KillickSchool of Applied Social & Policy Sciences, Shore Road, Ulster University, Northern Ireland.
Denise Mac DermottSchool of Applied Social & Policy Sciences, Shore Road, Ulster University, Northern Ireland.
Alan MaddockTrinity College Dublin, College Green, Dublin 2, Ireland.
Claire Jane McCartanSchool of Social Sciences, Education and Social Work, Queen's University Belfast, 6 College Park, Belfast, Northern Ireland.
Paula McFaddenSchool of Applied Social & Policy Sciences, Shore Road, Ulster University, Northern Ireland.
Anne McGladeStrategic Planning and Performance Group, Department of Health, 12-22 Linenhall Street, Belfast, Northern Ireland.
Lorna MontgomerySchool of Social Sciences, Education and Social Work, Queen's University Belfast, 6 College Park, Belfast, Northern Ireland.
Sonia PattonRepresentative with Lived Experience of Health and Social Care Services, Belfast, Northern Ireland.
Dirk SchubotzSchool of Social Sciences, Education and Social Work, Queen's University Belfast, 6 College Park, Belfast, Northern Ireland.
Brian TaylorSchool of Applied Social & Policy Sciences, Shore Road, Ulster University, Northern Ireland.
Fiona TempletonRepresentative with Lived Experience of Health and Social Care Services, Belfast, Northern Ireland.
Paul WebbPraxis Care, 25-31 Lisburn Road, Belfast, Northern Ireland.
Chris WhiteMental Health Foundation, Colechurch House, London Bridge, London, Northern Ireland.
Jade YapMental Health Foundation, Colechurch House, London Bridge, London, Northern Ireland.
University of Ulster · GBQueen's University Belfast · GBTrinity College Dublin · IE

Funding

Disability Research on Independent Living and Learning and from HSC R&D Division, Public Health Agency Award Reference: STL/5562/19
6 · The paper itself

Abstract

background'Getting Involved in Research' was co-created and delivered by a multi-organisational group to provide an accessible introduction to research for those with lived experience of health and social care services.

methodThe evaluation of participants' perceptions adopted an exploratory mixed method research design and aimed to gather data to provide an in-depth understanding of the participants' experience of 'Getting Involved in Research' through the co-researchers' analysis of qualitative data using Participatory Theme Elicitation (PTE). PTE was used with the qualitative data to promote co-analysis by the course development group; analyses from an independent academic was also used to further validate the method of PTE.

resultsThirty-five participants in total participated in 'Getting Involved in Research'. Age ranges varied from 19 to 73 years old. Participants were predominately female (n = 24), five males participated (n = 5) and there was one participant who identified as non-binary (n = 1). Six core themes were identified using the PTE approach: (1) A Meaningful Participatory Approach (2) Increasing the Confidence of Participants (3) Interactive Online Format (4) An Ambient Learning Environment (5) A Desire for Future Courses (6) A Balance of Course Content and Discussion. Participants in 'Getting Involved in Research' reported that the content of the training was applicable, relevant, fostered awareness of research methods and anticipated that it would support their involvement in research.

conclusion'Getting Involved in Research' has contributed innovatively to the evidence base for how to engage with and motivate those who have experience of health and social care to become actively involved in research. This study demonstrates that 'Getting Involved in Research' may be helpful to train those with lived experience and their care partners however, further research following up on the application of the course learning would be required to ascertain effectiveness. FUTURE DIRECTIONS: Future research should explore methods to apply research skills in practice to further develop participants' confidence in using the skills gained through 'Getting Involved in Research'.

Indexed as

Health and social care educationLived experienceParticipatory researchParticipatory theme elicitation (PTE)Patient and public Involvement (PPI)Service users

Identifiers

PMID35578275
PMCPMC9109673
OpenAlexW4280524961

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.