ArticleBritish journal of health psychology2022
"I sort of never felt like I should be worried about it or that I could be worried about it'" an interpretative phenomenological analysis of perceived barriers to disclosure by young people with coeliac disease.
Article in British journal of health psychology, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Who cites it
9 citing papers in PubMed, 18 citations in OpenAlex.
- How to make gluten-free friends: A quasi-experimental study on the psychosocial benefits of celiac camps.British journal of health psychology · 2025Article
- Development and Validation of a Pediatric Celiac Disease-Specific Quality of Life Measure.The American journal of gastroenterology · 2025Article
- The Strategies of Picture Books as a Mode of Health Communication for Young Children with Coeliac Disease.Children (Basel, Switzerland) · 2025Article
- Gluten-free diet management and well-being in children with celiac disease: A qualitative study.Pediatric allergy and immunology : official publication of the European Society of Pediatric Allergy and Immunology · 2025Article
- Life Challenges and Quality of Life of People Living With Coeliac Disease: Time of Diagnosis Matters.Journal of human nutrition and dietetics : the official journal of the British Dietetic Association · 2025Article
- Understanding the patient's experience of coeliac disease diagnosis: a qualitative interview study.The British journal of general practice : the journal of the Royal College of General Practitioners · 2024Article
- Love beyond gluten: self-esteem, illness identity, and social support in romantic rejection concerns among adolescents with celiac disease.Frontiers in psychology · 2024Article
- Adjustment experiences of adolescents living with well-controlled type 1 diabetes using closed-loop technology.Frontiers in clinical diabetes and healthcare · 2024Article
- "I sort of never felt like I should be worried about it or that I could be worried about it'" an interpretative phenomenological analysis of perceived barriers to disclosure by young people with coeliac disease.British journal of health psychology · 2022Article
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesThere has been little research in the United Kingdom regarding young people's experiences of disclosure of psychological difficulties relating to coeliac disease (CD) to others, particularly healthcare professionals. This study sought to address this systematically with a focus on the lived experiences of young people with CD. This study aimed to gain insight into how paediatric gastroenterology services could improve the patient experience for those with CD and support the identification of patients who may benefit from further psychological support.
designThis study used interpretive phenomenological analysis (IPA) of patient accounts.
methodsSeven young people with CD (aged 11-16 years) were recruited from a UK hospital paediatric gastroenterology service. Semi-structured interviews were carried out and verbatim transcripts were analysed using IPA to explore young people's experiences of CD and why they might feel able or unable to disclose psychological difficulties associated with their condition to clinicians.
resultsThree superordinate themes were interpreted from the data. The first encapsulated experiences of adjusting to the diagnosis within a developmental context, including the role of adults in information provision and the importance of peer support. The second outlined experiences of managing perceived or actual stigma regarding others' perceptions of the condition and themselves. The third incorporated perceived barriers to disclosure relating to power, safety, and beliefs about the role of medical professionals.
conclusionsFindings highlight the importance of clinicians continually providing developmentally appropriate information to young people and actively breaking down barriers to disclosure through body language and the use of clear questions regarding emotional experiences.
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