ArticleInternational journal of geriatric psychiatry2022
Care burden, loneliness, and social isolation in caregivers of people with physical and brain health conditions in English-speaking regions: Before and during the COVID-19 pandemic.
Article in International journal of geriatric psychiatry, 2022. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 1 of them a synthesis that pooled it.
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Who cites it
25 citing papers in PubMed, 1 synthesis or guideline pooled it, 42 citations in OpenAlex.
- The Global Impact of COVID-19 Control Measures on People With Dementia Living at Home and Their Carers: A Systematic Review of Quantitative and Qualitative Research Across 27 Countries.Brain and behavior · 2025Pooled it
- Exploring Loneliness in Family Caregiver-Care Recipient Dyads: Implications for Caregiver Burden.Geriatrics & gerontology international · 2026Article
- Between Ideal and Actual Care: Patients' and Family Carers' Experiences of Cancer Care Relationships.European journal of investigation in health, psychology and education · 2026Article
- The Impact of Dementia Caregiving on the Health of the Spousal Caregiver.Medicina (Kaunas, Lithuania) · 2026Review
- Bridging Infrastructure Gaps for Intergenerational Caregivers in Public Health Emergencies.Public health reports (Washington, D.C. : 1974) · 2026Article
- Article
- The unheard path: carer loneliness and epistemic injustice in critical and historical view.Humanities & social sciences communications · 2026Article
- Training needs of informal caregivers of persons with dementia in rural southwestern Uganda: A qualitative formative study.Global mental health (Cambridge, England) · 2026Article
- Social connection and sociodemographic predictors of stroke caregivers' burden during COVID-19 pandemic lockdown.Frontiers in health services · 2026Article
- A qualitative exploration of community kitchens to reduce household food waste as a public health intervention.BMC public health · 2025Article
- The emotional cost of containment: a cross-sectional analysis of treatment effects among informal carers in South Asia during the COVID-19 pandemic.Global health action · 2025Article
- Friendship and momentary loneliness in dementia caregiving: daily experiences of caregivers with high and low burden.The journals of gerontology. Series B, Psychological sciences and social sciences · 2025Article
- A Mediation Analysis of Trauma Symptoms on the Well-Being in Caregivers of Children with Medical Complexity.Healthcare (Basel, Switzerland) · 2025Article
- Coping with Emotional Distress via Self-Disclosure to Robots: An Intervention with Caregivers.International journal of social robotics · 2025Article
- Characteristics of older unpaid carers in England: a study of social patterning from the English Longitudinal Study of Ageing.Age and ageing · 2024Article
- Predictors of Psychological Distress Among Rural Family/Friend Caregivers of People Living With Dementia in the United States: Consequences of the COVID-19 Pandemic.The journals of gerontology. Series B, Psychological sciences and social sciences · 2024Article
- Factors associated with loneliness in Latin-American family care partners during the COVID-19 pandemic.Frontiers in psychiatry · 2024Article
- Changes and interruptions during COVID-19: caregivers of people with brain health challenges-A qualitative analysis.Frontiers in dementia · 2024Article
- Mental health impact of the COVID-19 pandemic on patients with neurodegenerative diseases and perceived family caregiver burden in Lima, Peru.Brain and behavior · 2024Article
- "Picturing a Way Forward": Strategies to Manage the Effects of COVID-19-Related Isolation on Long-Term Care Residents and Their Informal Caregivers.The Gerontologist · 2024Article
Corrections and comments
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Authors and funding
12 authors at 7 institutions in 4 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundPublic health restrictions due to the COVID-19 (SARS CoV-2) pandemic have disproportionately affected informal caregivers of people living with long term health conditions. We aimed to explore levels of care burden, loneliness, and social isolation among caregivers of people with enduring physical and brain health conditions in English-speaking regions worldwide, by investigating outcomes before and during the COVID-19 pandemic.
methodsA cross-sectional anonymous online survey data from 2287 English-speaking caregivers of people with long term health conditions from four English-speaking regions (UK, Ireland, USA, New Zealand) included measures of care burden, loneliness, and social isolation, reported before and during the COVID-19 pandemic. Analyses were descriptive, followed by an ordinal regression model for predictors of burden.
resultsCompared to pre-pandemic levels, all caregivers experienced a significant increase in burden, loneliness, and isolation. Caregivers of people with both brain health and physical conditions were the most burdened and had the highest levels of loneliness and isolation compared to caregivers of people with either a brain health or physical condition only. The increase in care burden among caregivers of people with brain health challenges was associated with caregiver's gender, moderate and severe emotional loneliness, magnitude and frequency of isolation during the pandemic, and care circumstances (cohabitation with the care recipient, restrictions on the ability to provide care).
conclusionsHealth and social care interventions should target caregivers' care circumstances and psychological outcomes, particularly in women, accounting for the significant additional burden of care, loneliness, and isolation resulting from pandemic-related restrictions.
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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.